Jump to content
Sclero Forums
Sign in to follow this  
Zigzag

Watermelon Stomach sufferer

Recommended Posts

Hello, I am a sufferer of watermelon stomach (GAVE), it's been ongoing for about 3 years so far and it's very lonely as I have absolutely nobody who knows anything about how I am feeling.

 

Any advice, help, support groups in the U.K. for watermelon stomach?

 

I am also a kidney dialysis patient - which makes this even harder. Would dearly love to have correspondence with fellow sufferers. Please please somebody talk to me :crying:

Share this post


Link to post
Share on other sites

Hi Zigzag,

 

Welcome to these forums!

 

I'm sorry to hear that you are suffering with Gastric Antral Vascular Ectasia (GAVE) (Watermelon Stomach) and I've included a link to our medical page to give you some more information.

 

I would suggest that if possible you consult a listed scleroderma expert, as a complex disease such as scleroderma, with unpleasant complications like GAVE, really does require specialist expertise and knowledge to ensure that you receive the correct treatment.  A specialist hospital would also possibly be able to put you in touch with support groups for scleroderma and GAVE.

 

We also have many Patient and Caregivers Stories about other sufferers, which I hope you'll find helpful and interesting.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

×