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I have been diagnosed with CREST about 20 years ago. I thought I didn't have the "s" part but think I may now.  It's the tip of my finger that is very hard and tight and is EXTREMELY sensitive if I hit it on something it about brings me to tears, is this scleroderma?

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The S stands for Sclerodactyly, which is a localized thickening and tightness of the skin of the fingers or toes. Sclerodactyly often leads to ulceration of the skin of the distal digits and is commonly accompanied by atrophy of the underlying soft tissues. It could be that this may be what you have, but you should speak to a Scleroderma specialist to get confirmation either way.

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Hi Peg,


Welcome to these forums!


I'm sorry to hear that you're experiencing painful symptoms and as Dimarzio has advised, it's possible that it could be due to the onset of sclerodactyly. However, it could equally be due to a totally unrelated cause, which is why I would suggest that you go back to your doctor, in order to eliminate any other problems, especially as you have been suffering with scleroderma for a number of years.


We do recommend that you consult a listed scleroderma expert as this complex disease does require a rheumatologist with specialist knowledge and expertise.


Kind regards,

Jo Frowde

ISN Board Member

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SD World Webmaster

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International Scleroderma Network (ISN)

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On 8/26/2017 at 2:41 AM, Peg said:

Thank you.  A trip to my doctor is needed. 

If your doctor is anything like mine, you will find it almost impossible to get an appointment. 

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