Clementine

Upper Endoscopy/Colonoscopy

7 posts in this topic

How often do you all get upper endoscopies and or colonoscopies?

 

I know after age 50 a lot of people get the latter, but for scleroderma purposes how often does your Dr ask you to get them? I'm way over due on both and really don't want to get either.  I've had them and don't think they are a big deal but I just don't want the expense or to deal with it but I know I should. 

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Hi Clementine, 

 

My son has an endoscopy every 12-18 months because he needs his esophagus stretched or has stomach pain from an ulcer.

I suppose it would depend on your symptoms; he just goes in when he's symptomatic.

 

Take care, Everyone.

Margaret

Mom to Gareth, 29 years old, DS/ASD

.

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Hi Clementine,

 

Thankfully I don't have any significant gut involvement so the pleasure of an endoscopy and/or a colonoscopy has eluded me. My husband (who doesn't have scleroderma) has had two and is not anxious to have anymore.

 

I have no medical training, but would suggest that, if like me you don't have the gut involvement, it may not be necessary to have one. However, your scleroderma expert is really the best person to advise you.

 

Kind regards,

 

 

 


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Not particularly worried about the bottom end, but I have heard heard mixed reaction from those that have had top end, some saying that they feel like they are choking and others who say it is no big deal.

 

I do wonder if it may have something to do with who is actually carrying out the procedure along with their experience and how much care they take.

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I met with a GI Dr yesterday and I don't think I am getting either procedure.   I feel terrible everyday and it's GI related but I'm trying to get better with Nexium and xifaxin.  

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Hi Clementine,

 

Well, the good news is that you won't have to have the rather unpleasant procedures, but I'm sorry to hear that you're still feeling so poorly at the moment.

 

I do hope that when you get the full effect of your medications, you will start to feel better.

 

:hug-group:

 


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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It takes more effort to prepare for endoscopy/colonoscopy than actual procedure. I am scheduled for both next week. Always, there is some risk involved with these procedures.


Kind regards,

 

Kamlesh

 

 

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