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Becs

New to Morphea

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Hi everyone,

I got my letter yesterday confirming Morphea. The letter from my dermatologist said it is reversible and not dangerous. My history is I started with an itchy patch of skin about 4inch long to the right and below my belly button in July 2017  (doc thought it was shingles)  it spread to the other side the up to just under my ribs on the right side and a bit lower on the left. and I was referred to dermatolog. By the time I had my punch biopsy I had a tiny area (2inch) on the left near my ribs. No scarring or pigmentation thickening has been left behind. Which makes me question if it truly is morphea.

 

Note, I was diagnosed with Celiac in December 2016.

 

Is it possible to burn out this fast and leave nothing behind? 

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Hi Becs,

 

Welcome to these forums!

 

I'm sorry to hear that you've been diagnosed with Morphea which is a type of localised scleroderma. A 2003 large multinational study found that 25% of people with localized scleroderma had at least one other non-skin symptom, such as osteoarticular (affecting bones and joints), neurological (epilepsy, headache, peripheral neuropathy), vascular, gastrointestinal (heartburn), respiratory, cardiac, or renal. Less than 4% of those with morphea had more than two non-skin symptoms and none of the people in the study developed systemic scleroderma during follow up.

Morphea can burn itself out after 3 to 5 years, even without treatment. There are various Treatments for Morphea. The current recommended first line treatment, in most cases, is UVA1 Phototherapy.

 

We do recommend that our members consult a listed scleroderma/dermatologist, as this disease does require specialist knowledge and expertise.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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