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Luwana F

Scleroderma and Sjogrens

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Hi Luwana,

 

Welcome to these forums!

 

I'm sorry to hear that you've been diagnosed with Sjogren's and scleroderma. Thankfully, I don't suffer with Sjogren's (and I'm hoping that pleasure will be indefinitely postponed), although I have been diagnosed with limited scleroderma for the last eight years. I'm still going strong, though!!:wink:

 

We certainly do have other members, who are suffering with both conditions and some of them may be along to support you.

 

We do suggest that our members, if possible, consult a listed scleroderma expert, as this complex disease does require specialist knowledge and expertise.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Luwana,

 

Welcome to Sclero Forums!  As it happens, quite a few of us have both Sjogren's and scleroderma. They figure about 20% of people with scleroderma also have Sjogren's.  It's also not unusual to be diagnosed with Sjogren's first, for any number of reasons.

 

One reason might be because Sjogren's, and Hashimoto's (autoimmune thyroid disease), are thought to be "gateway" diseases to autoimmunity. But part of that might be because those diseases are more common and much easier to suspect and diagnose than many of the rarer and more unusual autoimmune diseases, such as scleroderma.  Also, Sjogren's can "go systemic", imitating or overlapping with many symptoms of scleroderma.

 

I don't know your particular situation, but many of us with overlaps tend to get delayed diagnosis, since things get so confusing.

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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