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Kakykaky62

Hand surgery

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I’m contemplating having hand surgery to release my clawed hands from scleroderma.

 

Has anyone had the surgery who will tell if they’re happy with it?

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Hi Kakykaky,

 

Welcome to these forums!

 

I have no personal experience of hand surgery to help with the effects of sclerodactyly; however, I've included a link to our medical page on Sclerodactyly Treatments: Surgery, which I hope you'll find helpful and interesting.

 

There are clinical trials being done for an experimental treatment which consists of ADRC Injections (Adipose-derived Stem and Regenerative Cells) by Cytori Therapeutics for Systemic Scleroderma Hand Involvement, which does seem to be obtaining good results for sclerodactyly, so that might be worth investigating, as well as the surgical option.

 

Kind regards,


Jo Frowde

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Hiya, I’ve recently been diagnosed with scleroderma and I had the same problem.

 

I was referred to a hand therapist who gave me some finger exercises to do as my fingers were getting claw like. Every night I have to wear hand splints on both hands, it’s a slow progress. I’m in my early 20’s and guessing hand surgery is sort of a last resort. 

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Hi Siriskyler,

 

Welcome to these forums!

 

As well as the advice in the above posts, I've included a link to our medical page on Hand and Joint Involvement, which does include hand exercises which I hope you'll find helpful.

 

Kind regards,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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