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Shells14

Biopsy says features consistent with Morphea

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Hi everyone,

 

I'm new here and after beginning the process of diagnosis am hopeful for some advice.

 

I visited my dermatologist after noticing a reddish lesion on the small of my back. As best I can tell it had been there for about 4-5 months tripling in size from a start about the size of a quarter. The dermatologist saw it and immediately said, that's a morphea -- which at the time meant nothing to me. He did a two-punch biopsy and the results have come back as "features consistent with morphea".  At the time of the biopsy, I didn't know what morphea was, so I didn't ask questions.

 

When I returned for the biopsy results, I was armed with more information. I told my dermatologist I had concerns about diffuse scleroderma because I also had developed bad bloating, gas, some reflux and a lessening appetite as well as my arms & hands falling asleep at night with some regularity. He dismissed me and said if I was concerned I could talk to my general practitioner about "systemic scleroderma, which you don't have." I was somewhat stunned by his response -- especially since everything I have read says that GI & circulation issues aren't directly related to morphea.

 

Am I missing something?

 

Thanks!

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Hi Shells,

 

Welcome to these forums!

 

I'm sorry to hear that you've been diagnosed with morphea. As per our medical page the most important thing to know about morphea scleroderma is that it is entirely different from systemic scleroderma — and it is never fatal. I suspect this is probably to what your dermatologist was referring.

 

However, it is possible to have systemic scleroderma along side with morphea, as some of our members can testify. Of course, it is also possible that the other symptoms you're experiencing could relate to something totally different and not be anything to do with scleroderma at all. The problem with diagnosing scleroderma is that it has many different facets and affects everyone differently, so to obtain a diagnosis is extremely difficult. We do therefore recommend that our members consult a listed scleroderma expert, as this disease is very complex and requires specialist knowledge and expertise to deal with all it's little idiosyncrasies.

 

Kind regards,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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