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I was diagnosed with scleroderma about 20 years ago.

 

My daughter just tested positive for scleroderma.  How is that possible?

 

Could it be not from me but from my husband's great aunt who had this?

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Hi Tazzie,

 

Welcome to these forums!

 

I'm sorry to hear that your daughter has tested positive for scleroderma.  Researchers have found some genes associated with the development of systemic sclerosis. There are several types of scleroderma that are known to run in families, such as Familial CRST with Sicca, and Familial Progressive Systemic Sclerosis and I've included a link to our medical page on Causes of Scleroderma: Genetics, which I hope you'll find helpful and informative.

 

However, it is possible to test positive for scleroderma and yet never go on to develop the full blown disease (and vice versa), so it could be perhaps that your daughter's symptoms may never evolve any further. Unfortunately as you're probably aware, having had scleroderma for the last twenty years, the course of the disease is very uncertain and tends afflict all sufferers differently, which is what makes it so complex to deal with.

 

Kind regards,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Tazzie,

 

I'm sorry to hear about your daughters diagnosis. Jo gave you a few good links, I hope you find them helpful. She also gave very good advice. Thank you for posting, and please give my best to your daughter and you!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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