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kathygirl

Losing Balance

42 posts in this topic

hi all,

Hope everyone is able to enjoy the beautiful weather.

My question is does anyone have trouble with balance. I noticed when I was in the yard the lawn was a little uneven and I would lose my balance while walking.

Does that happen to anyone else? It does happen in the house on level flooring as well. Kathy

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Hey Kathy,

I lose my balance all the time. Have for over 6 years now. I use to fall alot, down steps, up steps, in the middle of the floor, it didn't matter. The one thing that did to be in common about falling it was in the dark or near dark. About 5 years ago, I had to go for a sleep sudy and the Dr. said I have peripheral neuropathy. He told me that I should never walk in the dark because since I couldn't sense or feel where my feet are, I fall. When he told me that I put night lights everywhere and I don't seen to fall no where near as often. I do lose my balance in the light now, but I also make sure to watch where my feet are going :lol: YOu know, I'm one of theose people looking down as they walk, now I may run into something!! So, you're not alone.


Peace :)

Barbara aka relicmom1

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I too am off balance alot. When the hot weather hits and I get numb more , it seems to be worse. But I do notice it all the time. Susie54

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Count me in too- I'm always veering off to the right for some reason. Good thing I walk with a cane! Does anyone know why exactly or is it just because of our conditions?

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Thanks for all your replies. Its nice to know its just not me.

Picture a group of us after having a couple drinks. :lol:

Kathy

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Well you can count me in on walking sideways LOL Would be a sight though wouldn't it? sclero=drunks ;) Can we use that in court?? I can't even walk a straight line sober!! :mellow:

I thought it was just me...nice to know we are all going through the same things! I'm not crazy after all <sigh>

Carrie


CarriePan :fairy:

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CarriePan-

 

Loved your post - Sclero-drunks gave me a much needed chuckle!! I just picture myself from behind and can now laugh about what I must look like. I'm trying to get disability- do you think this is a viable condition for the disease!? Seiously tho' can anyone tell me?

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i also fall or stumble a lot but I've always been a clutz but it has gotten worse this year than ever before I notice it the most when I first wake up or try to hurry to do something I'm glad I'm not alone in this smiles to all :D

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Dear TJ903~

I really don't know. Sorry :( I thought I was really a dizzbat bit not really dizzy because I felt my mind was playing with me lol Ugh...this morning I kinda fell off balance sideways and dropped all my meds on the floor LOL I watched them fall and did nothing! So much for my swollen fingers and loss of balance lol

Hope you're feeling good these days B)

take care~

Carrie


CarriePan :fairy:

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Nightfrog~

Clutz huh? Now we have a legit excuse? HA! Who knew?? What else is going on with you???

Have a good one...

Carrie


CarriePan :fairy:

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And I thought it was just me. I have been having trouble ever since I went to Vegas last April for my son's wedding. The minute I stepped off the plane, I felt like I had just gotten off a ship and couldn't get my land legs. I have seen a neuro, en&t guy, and have been going to physical therapy, she calls it vestibular. Don't think the therapy is helping, due to the fact that sometimes when my hubby and I are walking somewhere, all of a sudden I just might veer off in a total different direction. At least we can laugh about it. Can't stand up withmy eyes closed for very long, really sway and stagger. I am supposed to walk down our hallway and glance from side to side, well, how does running into the wall sound. Yep, that's me. Alan always wants to know what I have been drinking, lol. At least now I know I am not alone.

~whirlway

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Whirlway~

If I closed my eyes and walked, i'd fall over LOL It sounds funny but it's very frustrating :mellow: Just don't get caught walking down a hotel hallway LOL they just might call security :P

Take care~

Carrie


CarriePan :fairy:

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Hello All,

This is my first time here. I had to laugh at the losing balance answers. I was diagnosed with CREST in 1999, and I always say I'd probably walk better if I HAD drank. Always to the right, and thought it was just me being klutzy. I'm so glad I found this site as there seems to be sooooo much on here that applies, and it's comforting to know. Thanks all, Charlene

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WOW! I have a balance problem as well. I can be walking down a sidewalk and just fall. Last year I fell on the stairs and fractured my ankle. My husband says I need to watch where I'm going but I can't do that and watch my feet also. You should have seen me on crutches :D .

Connie

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Thank you all so much for sharing your clumsy, balance episodes. My doctor has never addressed this topic and I have been sick for 13 years. I have a fear of falling down the stairs to the point that we added onto our home so I can live on one floor. It has helped my fatigue and joints. I know that not everyone can do this- but I feel affirmed now with the need to do that. Yard work was very hard this season.I sit on a stool that looks like a tractor seat. It save me from kneeling and trying to get back up. Still the heat and work sets me back a few days.

 

Siouxzie ( I see there are a lot of Susies on this site )

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Hi Siouxzie,

 

Welcome to these forums!

 

I'm sorry to hear that you've been unwell for the last 13 years. Have you been diagnosed with Scleroderma? It certainly can cause vestibular balance disorders from which thankfully I've never suffered, but I know some of our other members have done. I've included a link to Brain (Cerebral) Involvement in Scleroderma which I hope you'll find interesting and informative.

 

Do keep posting and let us get to know you.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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I have a good friend who does not have sclero and has had two bad falls this past year, one where she broke her glasses and had to cut a vacation short, another where she just went down. She claims it's from looking around and not paying attention and has told me if she wasn't holding onto her husband's arm she would have gone down a lot more. Her mother had scleroderma but she is adopted and has no other symptoms so she just needs to pay attention.

 

I am a looking at the ground walker and always have been. When I was a runner I was told to look straight ahead at the horizon and the run would be better. Sorry, I don't trust the ground or pavement and look down. There is a whole theory on your personality based on where you look when you walk.

 

I stumble and have to hold on to things. I drop things all the time, especially pills. But I am one of these people that if I fall I GET UP really fast so that no one sees me (or as fast as one can with all the skin hardening.) Then, days later, I find bruises and bumps and think, where did I get that?

 

I'll read the links and see.

 

miocean


ISN Artist

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I never even thought twice about this until I read this post. I am wobbly all the time. I thought it was just cause I was stiff when getting up. Nice to know I am not alone.

 

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This morning I dropped a container of calamata olives all over the shelves of the refrigerator and floor. This is because of my bad hands not being able to put the lid on right, and my clumsiness putting the container on the shelf. I yelled words so loud that you are not allowed to put on this forum that I am surprised you all didn't hear them. Not only did I have a mess of olives and juice all over the place but these were REALLY good olives from a specialty Greek store in New York City. Normally, if something falls on the floor it goes in the garbage because I am so concerned about bacteria but the floor was clean and I opted for the 5 second rule and put them all back.

 

The good news is due to my skin softening I was able to crawl under the kitchen table to get a couple of stray ones and could bend down to wipe the mess up instead of having to call for help!

 

miocean


ISN Artist

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That's right Mio, don't forget the good bits. Your skin is softening so you can bend more easily, my Raynauds is absent but that's because I am getting so old!!!! I don't much like remembering I am getting old but I do enjoy feeling warmer for the first time in 40 or more years.

 

In the same vein, we decided to sell our house by the sea because it has stairs which I am finding exhausting. That is sad because our situation is fabulous, but because it is so great here we sold easily and at an excellent price. In return we have found a lovely one level home right by the water again. So sad to go but exciting to anticipate a lovely new home and I can't wait to be able to go to the laundry room without going down and up the stairs.

 

So this is a silver lining day

Hugs and best wishes

Blow that headache away

 

JudyT

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Judy,

I know what you mean about stairs. We have 5 levels!!!. There are broken into stages but the laundry is on the bottom. For years my husband did it all but now I am able to carry a small load up and down. Who ever thought one would get excited about something like that!

 

And another milestone last night!!! I was able to thread a needle and do a small repair on a blouse. I know it sounds so minor, but those of you here will understand.

 

Best wishes on your move, the reason we stay here is the water, too.

 

miocean


ISN Artist

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Hi everyone,

 

This is my very first post here - I was browsing around and this thread caught my attention.

 

I'm 44 and was diagnosed with Scleroderma in 2000. I'm very unsteady on my feet - I need help when I go out most of the time, otherwise I've been using a 4 pronged cane. I'm afraid of falling and getting hurt, and as a result I'm pretty much housebound and agoraphobic. My fiance does the grocery shopping , and he calls me every night before he leaves work to see if I need anything. I do most of my other shopping online - gifts, clothing etc.

 

I'm in the process of finding a new neurologist because I don't like the one I've been seeing. I will bring the information I found here and raise the possibility of this with my new neurologist.

 

It's nice to find this site, and I look forward to sharing and receiving info with others with similar issues.

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Welcome Jeannie,

 

So nice that you have found us and decided to post. Yes lots of us here are housebound either some or all of the time. For all sorts of reasons too.

 

Being wobbly is probably partly age and partly other causes which affect us perhaps more than other people. I have had periods of instability for many years some of it caused by inner ear problems which can affect balance and cause vertigo and also because I have had a tiny stroke in the balance area of my brain. There is nothing anybody can do about either cause so the Neurologist says but I find it easier to live with just knowing what the problem is.

 

Best wishes

JudyT

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Hi.

This topic is interesting. I have been more klutzy than usual, yet I still have good balance overall.

 

I ride a unicycle and I've had it out a couple times this year already. I did get a new helmet for bike riding since I don't feel as confident as I used to with my balance. I think it is more age related. I'm worried that if I fall I will do damage. I've been riding the unicycle since I was 16. That makes it 33 years of riding this summer. I would like to learn how to stay in one place and go backwards, but I'm a little nervous of falls.

 

Ears play a big part of balance, and I have continual ringing in my left ear, which started about the same time everything else did with my UCTD. I haven't had the vestibular dizziness that my husband has had where he couldn't even walk without getting ill.

 

I am dropping more things, and I don't know if that is not paying attention, or if my fingers are getting stiffer and smoother.

 

My physical therapist years ago said there are exercizes to help with inner ear issues with dizziness, and chiropractors usually know those too.

 

Mando.

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