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Patty

Anti-rejection Drugs ?

3 posts in this topic

Hi again everyone.

I went to my GI this weeka nd I have my liver biopsy date set for Nov 17!! MY question I have is that once its done they wanted me to go back on the steriods ( pred) but I will never take that again so they are talking about Anti-rejection drugs. does anyone here take them and what should I know about them?

I know that I need something because now that I am off the steriods I hurt so much more then I did b4 and my itching is back.

 

Thanks for any help on this! B)

 

Hugs,

Patty


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Patty,

Immunosuppresants are a type of anti-rejection drug that are used in high dosages after organs transplants. So that may be what your doctor is referring to. I would have him clarify and then let you know specifically which drug he wants to put you on. Many of us are on immunosuppresants. It's a standard treatment for autoimmune diseases. It sure beats those steroids! But then that's just my opinion.

Let us know how the biopsy goes. We'll be thinking of you.

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi,

 

I take 2000mg Cellcept with no side effect problems. You have to wean up to full dosage. Some people have sharp stomach pains in the beginning, mine were barely noticable and only lasted for about 5 minutes and only the first 2 days. You have to take it on an empty stomach.

 

It's sole purpose as far as I know is to slow progression of the disease. I don't know of anyone else but me taking it. I think they have only recently started using Cellcept for scleroderma. It doesn't do much if anything for aches, pains and stiffness. (I've just gotten so used to living in pain that I've accepted it as a part of life.)


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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