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RKing

Raynaud's.

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Since I have had the Raynaud's on 4 digit tips my left index finger was really bad. I have been using a variable great amount of everything I could find.

Vitamin E gel, silver sulfadiazine, aloe vera, 10mg of Amlodipine, 2 days of Sildenafil 20 mg 1 pill 3 times a day out of pocket. and a non allergenic, no odor moisturizer. 

I tried measuring the ulcers using a caliper but the pain was more so I gave up on that.

What I want to know is what do they look like when they begin to heal? The skin around the ulcer has disconnected or started peeling toward the ulcer and I am wanting to know if this is a good sign.

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Hi RKing,

 

I'm sorry to hear that you're suffering with Digital Ulcers; they can be very painful and difficult to heal. Thankfully, I don't suffer with digital ulcers, so can't advise you from my own experience.  I've included a link to our medical pages on Treatments for Digital Ulcers,  which I hope you'll find helpful and informative.

 

One thing to bear in mind with digital ulcers is that if they are not healing, then they are getting worse. With scleroderma, digital ulcers can lead to amputations. Everything and anything that helps improve circulation may help assist in healing and it is important to consult your doctor/rheumatologist if they're not healing, as it is foolish to attempt to deal with them with home remedies. "Wound Treatment Centres" specialise in the treatment of wounds, so if there's one available in your area, that might perhaps be an option for you.

 

We do have some Pictures of Skin Involvement in Scleroderma, including digital ulcers in our Photo Gallery.

 

Kind regards,


Jo Frowde

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International Scleroderma Network (ISN)

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I broke my ankle end of last year and had to have a plate put in. I got a nasty staph infection that required me to go to the wound treatment facility. I have a hole in my ankle about 6mm long, 5mm wide, and 8mm deep so I will be going to them a very long time as they keep digging and causing scar tissue to build up. I spoke with them on the phone and they said they would be willing to look at my ulcers on Monday then Wednesday I see one of my Rheumatologist and I can give the doctor the thoughts of how to go about treatment.

 

I would like to think the peeling is a good thing.  My ulcers are in the middle of a very hard and thick skin and this is what is coming off. I have to trim it as they catch on everything  including my gloves. 

 

Thank you for the links!

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I seen the wound treatment center yesterday for my ankle and they looked at my digital ulcers. They said they are healing nicely and there is no sign of infection. They said I could continue the OTC meds and vitamins as long as there is no negative results. He said if I had just came into him not taking anything he would suggest painting ulcers with betadine and removing an dead or peeling skin.  So I took his advice and reduced all the stuff I was doing and now I paint the ulcers with Betadine.

 

I assume it is different for each patient as none of us are the same, so do as I did and follow Jo's advice and follow up with a wound specialist. Though only a short time I actually feel a difference. 

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