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March

Gastroparesis - Autoimmune Protocol - Acupuncture

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Hello! I have gastroparesis along with other "gifts" from scleroderma. I am about 12 pounds from a feeding tube so I am asking if anyone with my condition has been successful using the autoimmune protocol and acupuncture. I tried the autoimmune protocol for 10 days but my weight dropped very fast so I had to stop. The doctors put me on Glucerna as a means of fattening me up but that stuff is filled with chemicals and fillers I don't want. The whole point of AIP was to eliminate dairy, gluten, eggs and other things for 30 days or more and then slowly introduce them back one at a time to see if you're sensitive to it. They talk about "leaky gut syndrome" and that autoimmune diseases can be helped by good nutrition alone. Also I have been advised that acupuncture has been shown to help with gut problems. Most of the research I have done shows glowing results but all are selling a book, videos, seminars, etc. so I am somewhat skeptical that this is a whole new money making industry on the backs of people with conditions like gastroparesis.

 

Feedback would be much appreciated!:thank-you:


 

Mary Alice

"Right is right, even if no one is doing it. Wrong is wrong, even is everyone is doing it." - Augustine

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Hi March,

 

Welcome to these forums!

 

I'm sorry to hear that you're suffering with very unpleasant symptoms and that you're having to deal with gastroparesis .

 

Please note that I have no medical training (except a now out of date first aid certificate ) however, I would advise that systemic scleroderma patients should always consult their doctor(s), especially their rheumatologist, before making any significant changes in their diet. In general, most doctors recommend that scleroderma patients follow a normal, well-balanced diet and do not cut out any food groups from their diet, nor go on any "cleansing" diets, since this may accelerate the disease process. Such a complex disease as scleroderma does require requires specialist knowledge and expertise and any dietary needs and medications should be taken under the advice of a properly qualified professional. We have a medical page on Diet and Systemic Scleroderma, which I hope you'll find informative and useful.

 

I've never tried acupuncture, so can't advise you from my own experience and we do have a thread on Acupuncture, which may be of interest to you.  However, I would be very wary of "glowing results" for any product without the clinical evidence to back it up.

 

Kind regards,


Jo Frowde

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International Scleroderma Network (ISN)

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There are known foods that are inflammatory and many people are sensitive to gluten and dairy without necessarily knowing it. I would rather find out if certain food groups are causing my autoimmune diseases. 

 

My niece who has multiple sclerosis has managed to halt and in some areas reverse the disease with diet and alternative medicine.

 

Thank you for your advice - my doctor is very supportive of healing via nutrition. I aim to get off all the Rx I am on as the liver takes a beating processing them.


 

Mary Alice

"Right is right, even if no one is doing it. Wrong is wrong, even is everyone is doing it." - Augustine

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