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Kamlesh

Scleroderma and Gluten and/or dairy free diet.

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Hello Friends,

I do not have crohn or Celiac diseases, however I have Scleroderma which is impacting internal organs. Having said this, any opinion on Gluten and/or dairy free diet. I have tried Gluten free diet for six weeks without any noticeable improvements.

 

 


Kind regards,

 

Kamlesh

 

 

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To add little more:

I do not have crohn or Celiac diseases, however I have Scleroderma which is impacting internal organs. Having said this, any opinion on Gluten and/or dairy free diet. I am trying Gluten free diet for six weeks without any noticeable improvements. I am vegetarian and have been follow Gluten free diet most of the time except few times tiny portion of wheat included in other gluten free items.


Kind regards,

 

Kamlesh

 

 

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Hi Kamlesh,

 

I've never tried a gluten or dairy free diet, so can't advise you from my own experience, but I've included a link to our medical pages on Celiac Disease and Gluten Sensitivity and Diet and Systemic Scleroderma to give you some more information.

 

Systemic scleroderma patients should always consult their doctor(s), especially their rheumatologist, before using any vitamin or herbal remedies or making any significant changes in their diet.

 

We also have some personal stories about Gluten Sensitivity in our Patient and Caregiver Stories, which I'm hoping you'll find interesting.

 

Kind regards,

 

 


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I also tried a gluten free diet with no noticable benefits.  I do find wholemeal bread better than white though.

 

I am currently on a low carb diet which means limiting bread consumption and am feeling somewhat better for this.

 

As with anything, your own mileage may vary. :happy:

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Hi Kamlesh, 

 

I currently have a diagnosis of Undifferentiated Connective Tissue Disease (UCTD), however I have Anti- Fibrillarin Antibodies and symptoms which are suggestive of Systemic Sclerosis.  I also do not have Celiacs or Chrohns Disease.

 

I quit eating all grains(wheat, corn, rice, beer, etc.) two weeks ago to see if this would help any of my GI issues. I am vegan so do not consume dairy and have not for some years before developing these changes last year. So far I have not noticed any changes from cutting out grains but intend to stick with the diet for at least one month. If this does or doesn't help me it doesn't necessarily indicate anything for you as we likely have different triggers/ causes but I will let you know just the same how it goes! 

 

The epithelial barrier is in the intestines, this is also called Increased Intestinal Permeability. I am now researching "foods which increase intestinal permeability" and trying to limit those. My vegetarian diet has consisted of grains and beans every day these past 8 years- two things that might contribute to increased intestinal permeability. I would like to limit both to see if this helps but being vegan and allergic to nuts I worry it would be hard to maintain a balanced diet- so for now, I will just cut out the grains. 

 

I will try to limit sugar, alcohol and other inflammatory foods as well. We are all different but I hope we can find strength and answers through what we have in common. 

 

In Hope, 

TGK

 

 

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