Jump to content
Sclero Forums

Recommended Posts

Hi, 

 

I have been a systemic sclerosis patient for over 12 years now. I am 31 years old. Along the way I developed several digital ulcers on my fingertips. However, for the first time in 12 years I have developed one such ulcer on the right big toe. It is on the corner where the nail meets the skin. It is very painful and uncomfortable. I cannot wear closed shoes because it is painful and if I wear open footwear, I am either stepped upon or I hit my foot into daily objects.

 

Have any of you experienced ulcers on your feet? If yes, can you please tell me how you dealt with it and things you did to make it less painful .

 

Thanks!

Share this post


Link to post
Share on other sites

Hi Rag,

 

Welcome to these forums!

 

I'm sorry to hear that you're suffering with scleroderma and Digital Ulcers; they can be very painful and difficult to heal, particularly on your toes. Thankfully, I don't suffer with digital ulcers, so can't advise you from my own experience.  I've included a link to our medical pages on Treatments for Digital Ulcers,  which I hope you'll find helpful and informative.

 

One thing to bear in mind with digital ulcers is that if they are not healing, then they are getting worse. With scleroderma, digital ulcers can lead to amputations. Everything and anything that helps improve circulation may help assist in healing and it is important to consult your doctor/rheumatologist if they're not healing, as it is foolish to attempt to deal with them with home remedies.  I'm not sure whether you have a "Wound Treatment Centre"  in your area; they specialise in the treatment of wounds, so if there's one available in your area, that might perhaps be an option for you. If not, then I would advise a trip to your doctor to try and get the ulcer under control, before it becomes any worse.

 

Kind regards,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Thanks Jo.

 

Hopefully it heals soon and I am able to get on with life normally. It can be such a distraction from our daily routine. It's very difficult to focus on something when you are in constant pain.

Share this post


Link to post
Share on other sites

Hi Rag,

 

Welcome to Sclero Forums!  It's not possible for us to over-stress the importance of making sure you see your doctor and follow through carefully on treating any skin ulcer.

 

Wound care centers can be very helpful, as well as working with your scleroderma expert to figure out ways to help avoid them, as much as possible, in the future (such as by making sure your Raynaud's is treated the best it can be; that you are taking steps to avoid injuries (like by staying warm, and protecting vulnerable areas by wearing protective gloves or socks). 

 

For me, I'm much more prone to toe ulcers than finger ulcers; and I find they generally take a lot longer to heal, too. I try to stay alert to the need to stay warm at all times, from head to toe, and to follow our Raynaud's Prevention Tips. But as you know, with scleroderma, stuff can still happen despite our best efforts. 

 

I have this mantra, "Superman died of a bed sore!" that I use it to try to keep up with my own best wound care practices. 

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Hi Shelley,

 

Thank you for taking the time to write back. Sadly, in India we don't have any support group or wound care centres. So we have to solely rely on our doctors for any kind of help or medication. While I do understand it is imperative to consult the doctor, it is always to good to know of other's experiences. You never know what you could learn from that. 

Share this post


Link to post
Share on other sites

Hi Rag,

 

You are right, it's been really hard for us to find resources for scleroderma in India.  So far we only have one scleroderma doctor listed, who is in Pune. Here is the link to Dr. Patel http://www.punerheumatologist.com/ . 

 

Just remember, with digital ulcers, if they are not getting better, they ARE getting worse.  That's not intended to panic anyone, of course.  But it definitely is a reminder to not take an ulcer for granted, or skip any doctor appointments for it. 

 

The goal is to get it to heal, before it suffers infection, gangrene, or amputation.  Scleroderma makes all those adverse outcomes more likely, so we can't afford to ignore any aspect of wound care.  And I know it requires a lot of vigilance to treat even a small wound properly; especially ulcers that can be around for a long time, it is easy to take them for granted. 

 

:hug-group:

 


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...