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How did any of you get your diagnosis for scleroderma?


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I've looked up the different things that I've went to doctors for, like the red dots on my face, chest, and upper arms.

 

My eyelids are thickening and changing colors. I have a big brown patch on my face, I have crusty skin on my hands and arms. I have IBS and a peptic ulcer, I've had pulmonary embolisms, and I get pleurisy. I have more, but I live in Southwest Missouri and there's not much advancement here.

 

What kind of doctor would be best to talk to?   

 

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Hi Ryser,

 

Welcome to these forums!

 

I'm sorry to hear that you've been suffering with unpleasant and worrying symptoms. Please note that I have no medical training (apart from a now out of date first aid certificate). Although it is possible that the symptoms you describe could relate to scleroderma, they could equally relate to many other health conditions. The difficulty with obtaining a diagnosis for autoimmune problems such as scleroderma is that because it is such a complex disease and presents itself in so many different ways, obtaining any diagnosis is fraught with problems. I've included a link to our medical page on Difficult Diagnosis, in order to give you some more information.

 

As it's uncertain at this stage whether you are suffering with scleroderma, I would suggest that you firstly approach your primary doctor with a list of your symptoms and it may be necessary to undergo some medical tests with a view to possibly obtaining a referral to a listed scleroderma expert, should that be necessary. It will almost certainly require that you go out of state, to find a suitable specialist.

 

Kind regards,

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Hi Numberoneladyboss,

 

Welcome to these forums!

 

I'm sorry to hear that you've been recently diagnosed with scleroderma. I've included a link to our medical page on Genetics, which I hope you'll find interesting and informative. I would wholeheartedly agree that to obtain a diagnosis, whilst not feeling ecstatic about it, is certainly much better than wondering and worrying about the possible cause of the symptoms you're experiencing.

 

I've recently found that there is scleroderma in my family, on my mother's side.

 

Kind regards,

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