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It seems like every three months when I go to one or more doctors they come up with something new. On Wednesday I went to the memory neurologist, he did a MRI of my brain and it scared me. After the MRI we now know what is causing the memory problems, the falls and not being able to come up with a word that I just can't get out .

 

I have what is called (small vessel ischemic disease) and I found that it is mini strokes; as I understand at this is not a major problem (yet) and after the blood test at the last visit I found out I have kidney problems and my thyroid is under active. I don't want to go to Omaha any more, but all the test and MRI and x-rays are giving me some peace of mind. Some people think I'm crazy by saying now I know because I am like most people; I have a distorted imagination about what the tests are for and I am going to die today or wake up with tubes coming out of every orifice and some that are just there. I had to learn to laugh and not give up which I have done at times; the only thing about that is now I get to clean up the mess.

 

 I hope others keep their heads on straight.

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Hi Quiltfairy,

 

Thanks very much for updating us on the results of your MRI scan. Whilst obviously it is not good to have small vessel ischemic disease, I do understand that at least it is a relief to know the reason for any new and worrying symptoms, rather than allowing your imagination to run riot.

 

I've always found that the fear of the unknown is far worse than the actual diagnosis, and now that your doctors are aware of these new problems, hopefully they will be able to help you deal with them accordingly.

 

Best wishes to you.

 

:hug-group:


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Quiltfairy,

 

I'm sorry about your results. I certainly don't mean to belittle your situation, but something Jo said reminded me of what I do. I ALWAYS imagine the worst lol The outcome rarely comes close to my crazy imagination. I do this thing with myself when overwhelmed with the unknown. I play "What's the worst thing that can happen?" When I get down to the brass tax of it all, and how I would deal with that worst thing, for some reason, I relax. I realize no matter what it is I can get through it. 

 

I'm a strong person, or used to be... So many changes in my life this past couple years, personal and health related. My life as I've known it, isn't my life anymore. Acknowledge, process, adapt and let it go. Easier said that done, but  that's the only way I can get through, because as you know many don't get where we are coming from. 

 

Love ya!!!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Live everyday as if it were your last. That's what I'm doing.  I will fight this disease for as long as I can.  The thyroid issue is pretty easy to fix. The kidney problems need more detail to be able to fix and I'm not sure what to say about the small vessel issue other than that a blood thinning drug might be able to help.

 

Hope it all turns out well for you, but keep on fighting.

 

Dimarzio.

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Hi Quiltfairy,

 

I can also relate to always imagining the worst, but being relieved to have any answers, even if they are negative or another big thing to adjust to.  

 

For some reason, just like Jo and Sweet, it is stress-relieving for me to imagine the very worst (this'll kill me by tomorrow, for sure!) and then anything less than that seems like a happy little walk in the park for me.  Maybe it's because it changes my attitude from feeling sorry for myself, to being grateful that it's not even worse than it is; and I'm certain that any bits of gratitude improve my mood and sense of well-being. 

 

I'm sorry you have even more serious medical issues to deal with. The one thing I do know is that you have the solid determination to tackle them head on, come what may, as that somehow always shines through in your posts, even during those moments when you might be feeling at your wit's end.  Here's some more hugs, to help you get through today. 

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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