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Olimpia

Recently diagnosed with Scl-70

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I’ve been recently diagnosed with Scl-70.

 

I’m scheduled to see a rheumatologist next month, meanwhile I’ve been reading about this and I just don’t know what to think. To say that I’m scared would be an understatement. In 2014 I was diagnosed with non Hodgkin’s lymphoma and to be honest it didn’t worry me as much as this recent diagnosis. I do not have too many related symptoms. Confused......

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Hopefully, you have the limited version, Olimpia which whist unpleasant normally does not have a great effect on life expectancy.  Don't fret too much and wait to see what the Rheumatologist has to say.

 

I tend to try not to worry too much about things I can't control and concentrate on those I can.

 

Good luck and best wishes. Dimarzio.

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Hi Olimpia,

 

Welcome to these forums!

 

Regarding your positive blood result of the Scl-70 antibody, please see our sticky thread here on the subject.

 

Kind regards,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello my friend,

 

Remember, one day at a time, otherwise everything can be so overwhelming. I had myself in the grave many times to find out it all wasn't so bad. Easier said than done, but don't worry until there is something to worry about. And even then I find out it wasn't as bad as it was in my mind. :)


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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TBH, I would be more worried about a diagnosis of non-Hodgkin's lymphoma then I would a diagnosis of scleroderma (neither of which are very nice).

 

When diagnosed, I initially gave up because the anti depression medication I was given for my 'imaginary illness' caused side effects which gave the impression that my limited scleroderma had defused quite quickly.

 

Once I had ditched the anti depressives (which I clearly didn't need), I began to feel more positive and began to take more exercise and built myself back up again.  

 

From being barely able to walk 3 years ago, I now walk 3 or 4 km per day, have been tent camping twice, have enjoyed 3 foreign holidays, have been learning to fly paramotors and doing a fair amount of DIY all of which I thought I would never again be able to do at the time.

 

It's been hard work and every day is painful, but I will make the most of life for as long as I can, no matter how much it hurts. I will fight this as long as I can and will not give up until I have to, whether that is in a year, 5 years or 20 years.

 

Positivity and tenacity can go a long way. Don't dwell on the negatives and focus upon what youcan do rather than what you can't.  Above all, look after youself well and have as much fun as you can.

 

Best wishes, Dimarzio.

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Hi Olimpia,

 

Welcome to Sclero Forums!  I'm sorry you have concerns regarding SCL-70.  As it happens, about 30% of people with non Hodgkins Lymphoma show a positive ANA, but without it being due to autoimmune disease.  The studies about that are over 3 years old, so we won't link to them in the forums, however, you can Google the topic. 

 

Perhaps that's it?  Or perhaps not. Only your rheumatologist, preferably a scleroderma expert if you are experiencing any symptoms of it, could know for sure. Even then, the illness is diagnosed based on symptoms, not blood work, which is why symptoms rule the day. 


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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