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Raising Scleroderma Awareness Now!

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The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Posted 05-01-07. (Also see: ISN Secure Shops)

Joseph Agro
Susan Campbell
Lori Carn
Julie Ford
Thomas Lukcso
Mary Sue Madden
Pearl Martinez
Teresa McLaughlin
Melinda Peterson
Barbara Pierce
Samantha Rudesill
Christina Wilson


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Lisa,

I got one too and wear it every day! I keep waiting for someone to ask me what my bracelet says, but I haven't had anyone ask yet.

Have a good day!

Nan

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In line at the grocery store I had another chance to tell someone about scleroderma - the checker. She said she knows another customer with diffuse but couldn't recall her name so she took mine, and my phone number to give to her next time she sees her.

 

I have been told about this woman by other people in my small town. I have even tried to flush her out with a personal ad. I think I may have seen her last year in the grocery store but I was too new to this disease and too afraid to aproach that person then. Hope I get to connect with her someday.

 

Anyway, only good can come from spreading awareness.

 

Take care all,

 

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Reposted 05-09-07. (Also see: ISN Secure Shops)

Joseph Agro

Nan Blackwell

Kristina Blake

Stacie Brink

Susan Campbell

Lori Carn

Elena Farina

Julie Ford

Kristi Forman

Margaret Jackson Thomas Lukcso

Mary Sue Madden

Pearl Martinez

Teresa McLaughlin

Melinda Peterson

Barbara Pierce

Samantha Rudesill

Suzanne Verschneider

Christina Wilson


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


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The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as books, brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Reposted 05-18-07. (Also see: ISN Secure Shops)

Joseph Agro

Nan Blackwell

Kristina Blake

Stacie Brink

Susan Campbell

Lori Carn

Patty Crane

Elena Farina

Julie Ford

Kristi Forman

Margaret Jackson

Anna Johnson

Jacklyn LaPerriere

Thomas Lukcso

Mary Sue Madden

Pearl Martinez

Teresa McLaughlin

Melinda Peterson

Barbara Pierce

Samantha Rudesill

Toni Spangle

Suzanne Verschneider

Christina Wilson

Michelle Zagorski


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as books, brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Reposted 05-26-07. (Also see: ISN Secure Shops)

Joseph Agro

Gizelle Bernier

Nan Blackwell

Kristina Blake

Stacie Brink

Susan Campbell

Lori Carn

Patty Crane

Elena Farina

Julie Ford

Kristi Forman

Margaret Jackson

Anna Johnson

Jacklyn LaPerriere

Thomas Lukcso

Mary Sue Madden

Pearl Martinez

Teresa McLaughlin

Melinda Peterson

Barbara Pierce

Samantha Rudesill

Toni Spangle

Suzanne Verschneider

Christina Wilson

Michelle Zagorski


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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When I first found this site I bought two bracelets, one for me and one for my daughter. They have been on our wrists since the day I received them. I put the brochures on my coffee table with the magazines with the hope that our friends will read it. Everyone that we know are aware that I have a disease that has made me disabled, but they don't know to what extent this disease can go. I put them there with the hopes that the will read them. I just bought two more bracelets and two brochures. I am going to give them to my rheumatologist and hopefully she will share the info, at least the website, with others. I was hospitalized ( on the cardiac step down unit) for two days last April and every nurse asked me what my bracelet was for. I was surprised that most of the nurses did not know the first thing about scleroderma!!!!!! Let's keep trying to get the awareness out there and get the studies and support from the medical community!!!


Peace :)

Barbara aka relicmom1

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Thank you for helping raise awareness, Barbara -- we all really appreciate it! And it also shows the difference each one of us can make as individuals, by simply wearing our awareness bracelets, giving out brochures (or setting them out or making them available to our doctors), and just talking it up, in general.

 

That is definitely tackling scleroderma now...without any huge investment of either time or money.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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