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Jacob

Skin thickness

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Dear friends, 

 

When the disease start affecting the face, does it start with hurting? Do you feel it? How does it feel?

 

Thank you,

Jacob

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Hi Jacob,

 

Thankfully, I don't have any skin involvement on my face, so can't advise you from my own experience. However, I understand from friends who have suffered with facial skin involvement, that the skin feels very tight and uncomfortable.

 

I've included a link to our medical page on Scleroderma Skin Involvement, which I hope you'll find helpful and informative. However, I would suggest that if you're experiencing symptoms which are worrying you, you should contact your doctor, or preferably a listed scleroderma expert, in order to receive the correct advice and treatment.

 

Kind regards,


Jo Frowde

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International Scleroderma Network (ISN)

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My face got so tight that I had to have lip implants to keep my lips from shrinking away.  It does hurt, especially where the skin pushes against the teeth.

If your lips or mouth is invloved, I strongly recommend having the lip implants early.

Lois

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