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Hi,

 

I had minor oral surgery on the 31st of July. The dentist cut away 5mm of gum on a lower canine tooth to gain access to a cavity.  It swelled up, but I was told that was normal. I was using a special mouth wash.  On the 7th of August I had the tooth filled and it started bleeding again.  On the 12th I went back to the dentist complaining about jaw pain and swollen face.  He said keep using the mouth wash. Later that night I went numb, could not feel the area he worked on. 

 

August 14 I seen my family doctor, she took my temperature and I had a fever, she put me on antibiotics, 2 days later the fever broke, I went to another dentist complaining about bowel problems, and she put me on a new antibiotic.  I have been on that one since the 17th of August.  August 26 I went in to see another dentist, as the other one was on vacation. He said he didn't think it was filled with pus, just blood and fluid.  I asked if he could try and drain it with a needle, he didn't think anything would come out, but I insisted and he tried and nothing came out. Now the area swelled up again.  My antibiotics run out in September 1. 

 

I have systemic scleroderma, diagnosed in 1987.  Lung, skin, GI, involvement, you know the drill.  Wondering if this delayed healing is all due to scleroderma. The dentist and doctor do not know what to do, I am still numb and swollen. 

 

Any advice would be greatly appreciated.

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Hi Ronald,

 

I'm so sorry to hear about your surgery problems and the subsequent infection you've developed. It must be so painful and worrying for you.

 

I'm afraid I have no medical training, but I think that it's quite likely that the healing problems you're experiencing are related to scleroderma and possibly the medications you're taking. (I know my dentist recoiled in horror when I gave her a list of my medications and she does take extra precautions if I have to have any dental surgery.)

 

We do have a medical page on Dental Involvement, but I don't think it tackles your problem specifically. I would suggest that you consult your scleroderma expert for advice, as it does seem that you do need his specialist advice to deal with such a severe infection.  

 

Kind regards,

 


Jo Frowde

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Thanks for the reply, I am in pain, lost a LOT of weight, weak, night sweats, not sleeping well. 

 

Went to the doctor yesterday, my family doctor is on holidays, this old guy didn't examine me, didn't send me for tests, just said I am a little frail or something to that effect then switched topics and started talking about meds I have been on for 20 years, cutting me back. 

 

I was so upset, I walked out of the office in tears.

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Hi Ronald,

 

I can understand why you must be feeling upset; hardly a helpful discussion with this doctor!

 

As I suggested in my previous reply, you really do need to consult your scleroderma expert (or try an obtain a consultation with one, if you aren't seeing one at present). The average doctor/rheumatologist really does not have the knowledge and expertise to deal with the complications that can arise from such a complex disease as scleroderma.

 

Kind regards,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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On 8/29/2019 at 1:48 PM, Joelf said:

Hi Ronald,

 

I can understand why you must be feeling upset; hardly a helpful discussion with this doctor!

 

As I suggested in my previous reply, you really do need to consult your scleroderma expert (or try an obtain a consultation with one, if you aren't seeing one at present). The average doctor/rheumatologist really does not have the knowledge and expertise to deal with the complications that can arise from such a complex disease as scleroderma.

 

Kind regards,

I am getting a referral to her on Tuesday, as I have not seen her in 3 years, they need a referral letter.  Thanks for the support.

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Hi Ronald,

 

I'm really pleased to hear that you're going to see a scleroderma expert and I do hope she'll be able to help and advise you.

 

Please let us know how you get on, when you have your consultation with her.

 

Kind regards,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Ronald.  I had a premolar out 10 days ago.  Very painful and swollen for a week and still sore if I accidentally bite on it.  No infection though and I'm sure it will be OK in a few more days.

 

I do get the feeling that we Sclero sufferers do tend to heal more slowly though, as I've found with a few cuts and insect bites too.

 

Painkillers are notorious for causing bowel problems.  I took a fair amount of pain medication and ibuprofen before and after the extraction and needed quite a few laxatives to get things going again. A well-known side effect of a number of antibiotics is is diarrhoea, so maybe one can cancel the other out.

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On 8/31/2019 at 12:31 AM, Joelf said:

Hi Ronald,

 

I'm really pleased to hear that you're going to see a scleroderma expert and I do hope she'll be able to help and advise you.

 

Please let us know how you get on, when you have your consultation with her.

 

Kind regards,

Went to ER by ambulance last night, swelled up really bad, face and neck, every hour it got worse, waited in ER 5 hours, they gave me 2 antibiotics IV, no sleep, got home at 6:50 ate (hard to eat so much swelling) and went to bed.  The swelling stopped.  My face is pretty bad though.  But the progression stopped with the IV antibiotics.

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On 8/31/2019 at 9:06 AM, dimarzio said:

Hi Ronald.  I had a premolar out 10 days ago.  Very painful and swollen for a week and still sore if I accidentally bite on it.  No infection though and I'm sure it will be OK in a few more days.

 

I do get the feeling that we Sclero sufferers do tend to heal more slowly though, as I've found with a few cuts and insect bites too.

 

Painkillers are notorious for causing bowel problems.  I took a fair amount of pain medication and ibuprofen before and after the extraction and needed quite a few laxatives to get things going again. A well-known side effect of a number of antibiotics is is diarrhoea, so maybe one can cancel the other out.

Only pain killer I take is Tylenol  (acetaminophen), extra strength. I tried an Aleve ( naproxen) and could not pee.

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