Jump to content
Sclero Forums
Sign in to follow this  
jeannie mcc


Recommended Posts

Hi Jeannie,


I think it's been available in the UK for Idiopathic Pulmonary Fibrosis (IPF) since 2014, although I don't think that it's been used for SSc-ILD in the UK.


I've included the Press release details of the FDA approves first treatment for patients with rare type of lung disease. on the Scleroderma Medical News for September and I'll post the full newsdesk details on the Forums today.


Unfortunately (or fortunately, depending on your point of view :wink:) this is a little late for myself; however, my ILD is so much improved I have no need to have this particular medication prescribed. Hopefully, it will be available soon for other patients in the UK.


Best wishes,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Sign in to follow this  

  • Create New...