scleroguy

Does Anyone Else Suffer After Taking A Shower?

12 posts in this topic

I suffer greatly for two or three days after taking a shower. It can take as much as three or four days for me to recover from the fatigue, muscle pain, and other symptoms. It is worse than if I overexert myself. I have diffuse scleroderma and myositist, so I don’t know which might be the cause. I am working with my Rheumatologist, but he has not heard of this before. My Dermatologist thinks it might be some kind of allergic reaction. Increasing my prednisone on the day that I take a shower helps some.

 

Has anyone experienced something like this?


Ron

 

Updated 8/10/07: Mixed Connective Tissue Disease (dx 03/2002). Diffuse Scleroderma, Dermatomyositis.

Share this post


Link to post
Share on other sites

Hi Ron,

 

Wow, I want to say I'm really sorry you are having this problem. That's a tough one! I dont have symptoms like you are describing, but I do come out of the shower, with my skin very red, irritated and I'll itch for hours!!!! Sometimes, I just want to scratch myself raw! I use a heavy moisturizer hoping this will help but it doesn't. The itch feel very very deep. Hard to explain, but maybe if you share this with your doctor it will give some validity to your complaint.

 

Again, I'm sorry,

 

Much love Sweet


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi,

 

I am so sorry to hear of your problems after showering. Do you ever take baths? I am wondering if that would help determine whether this is a mysotitis problem (i.e., you exhaust yourself by standing in the shower) or an allergic reaction (as I would guess the water and soap, etc. would be the same as in the shower). Just a thought.

 

I do hope the doctors can get to the bottom of this and provide some options for relief.

 

Warm wishes,

Heidi

Share this post


Link to post
Share on other sites

Hi Ron,

 

Have you thought about trying to eliminate the possible causes? There are several factors that might be causing this reaction, including length of time standing up, the temperature of the water, the force of scrubbing, and the type of soap.

 

You might want to consider reducing all the factors at once to see if it makes bathing more tolerable. Such as, using a shower bench to sit the entire time; keeping the water tepid (not warm and not cold, and certainly, not hot); using only the lightest possible scrubbing motion with hands (not rough washclothes); and using only baby soaps or shampoos or other nonallergenic products as prescribed by your doctor. Bear in mind that even a light toweling off might be the sort of irritation for your muscles, so try only very gently dabbing with a very soft towel, or simply wrapping yourself in an absorbent robe, or even air drying.

 

Also, make it an absolute minimum time, like just a few minutes (set a timer) since just the length of the activity might be problematical for you right now.

 

If you can survive a short shower like this, you may be able to take them more often and not need to use medication. You could gradually add back in one item (such as making the water temperature warmer) to see whether that is the thing that is causing the reaction or not.

 

I'd suspect it would be a combination of everything that is defeating you -- the standing up, the water temperature, length of time, and vigorous scrubbing or drying off.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Hi Ron,

 

I have a very hard time after showers also. I'm to the point now that after I wash my hair my arms are so fatigued, just like I lifted weights. I get very SOB also with washing my body. The whole thing makes me tired and I dread that feeling. I don't have myositis based on my labs, but my rheumatologist thinks it may be just starting. Just wanted you to know your not alone.

 

Laura

Share this post


Link to post
Share on other sites

Hi Ron,

Prior to being diagnosed with Scleroderma, I had heightened sensitivity to the water from a shower hitting my skin. It felt as though knives were being thrown at me. I later realized that Scleroderma and Psoriasis aren't a good combination and adding other symptoms to the mix didn't help either. Thankfully, these symptoms calmed once the flaring of each disease ebbed.

I hope you feel better soon, but am glad the Prednizone is helping.

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi everyone,

 

Thanks for the feedback. I will try some of your suggestions and let you know what I find out. Also, my dermatologist gave me a prescription for a stronger antihistamine to try.

 

Much love.


Ron

 

Updated 8/10/07: Mixed Connective Tissue Disease (dx 03/2002). Diffuse Scleroderma, Dermatomyositis.

Share this post


Link to post
Share on other sites

Hello,

 

Sorry to hear about your discomfort. I have limited Scl, with rheumatic problems. For the last few months I have started to only shower every few days, with light washing in between. I come out of the shower very puffy, as this is what heat seems to do to me.

 

Also I am very immoblile in the mornings with great weakness. The mornings where I live can also be very cold, so I did start to have showers in the afternoon, but then they can weaken me so I can't look after the kids. So for me the timing is important.

 

I am in Australia and sometimes the water is so chorinated you feel like you've washed yourself in bleach. I have discovered a shower head that has a filter on it, which should get rid of the chemicals in the water thereby helping with some of the skin irritation.

 

If you do have a bath be aware that weakness may prevent you rising out safely.

 

Best wishes

Share this post


Link to post
Share on other sites

Ron,

I too have dSSc and myositis (specifically polymyositis or PM). When my PM was very active in the beginning, I sufferred fatigue and muscle soreness after a shower as well as very dry itchy skin. In fact, my arms and shoulders became so weak that I was unable to wash my own hair. As my CPK dropped the symptoms decreased and now I have no problems taking a shower. I hope your symptoms go away soon and things get better for you. Please keep us informed of how you are doing.

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Ron,

 

i am not sure where you have purchased the shower filter. because I really did not have any problem with mine. If you want to send me a PM, I can tell you where I got mine. It gives me a kind of pleasure in terms of health and water filtration.

 

thanks

gelfey

Share this post


Link to post
Share on other sites

Ron - In addition to Shelleys post, also you could look into what your towels are being washed in. Both of my boys can only use a particular brand of detergent or they feel like their skin is itchy all the time.......a baby brand of detergent might do the trick too, along with some of the other suggestions.


Oddone - Spouse - 38 yr old Husband diagnosed October 2006, Diffuse Systemic Scleroderma

Normal PFT(July 06), ECG(Nov/06)

Share this post


Link to post
Share on other sites

I too suffer after showering. Luckily it only takes a few hours to recover. I'll be red , white & blue, itcth & ache. I figured it was the raynauds & sclero.

 

Katherine

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now