Ronald Posted September 26, 2019 Hi everyone, For some reason I am getting more painful ulcers on the end of my fingers. This all started back in the 80's and when I was first diagnosed with systemic scleroderma in 1987. For some reason I am getting more painful ulcers that take a very long time to heal. Not sure why all of a sudden they are getting bad. Been very sick with an infection lost 22 pounds (not from scleroderma). Any hints? Any advice? Quote Share this post Link to post Share on other sites
Joelf Posted September 26, 2019 Hi Ronald, I'm very sorry to hear that you're still suffering so badly with Digital Ulcers. Perhaps, because you've been very poorly with a nasty infection, this may have caused them to flare up so badly this time? I'm afraid I don't know of any more recent treatments other than we've listed on our medical page above and consulting a Wound Care Centre. Kind regards, Quote Jo Frowde ISN Board Member ISN Secretary of the Board ISN Assistant Webmaster SD World Webmaster ISN Sclero Forums Manager ISN News Manager ISN Hotline Support Specialist International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Ronald Posted September 26, 2019 Hi, It's possible, and am not sleeping well at all, I get 3-3.5 hours sleep every night, I just cannot sleep. In the daytime I have a hard time functioning, due to lack of sleep. The infection and 26 days of IV and oral antibiotics really messed me up. I think my immune system is not operating at full capacity due my my illness. That's all I can figure out what's happening. Quote Share this post Link to post Share on other sites
Sweet Posted October 3, 2019 No good advice from me, just deep sympathy . I don't sleep much either, and I feel your pain. Quote Warm and gentle hugs, Pamela ISN Support Specialist International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Ronald Posted October 3, 2019 Hi Pamela, I just may have to get use to it. Seeing my scleroderma getting worse is a bit depressing, ulcers are really getting bad, and winter is not even here yet. I guess I am lucky, this all started back in 1984 and diagnosed in 87, internal organs involved, lungs, GI, tight skin, etc. I cough so much you would think I had lung cancer. But I am still here 32 years after diagnosis. Maybe its all the junk food I ate over the years. Quote Share this post Link to post Share on other sites
Sweet Posted October 7, 2019 Nice to see you are keeping a bit of humor. Have a Twinkie for me! Quote Warm and gentle hugs, Pamela ISN Support Specialist International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Ronald Posted October 8, 2019 Sweet, I am actually serious. I use to eat a very poor diet and I think that made the process slow down. Junk food and fast food was a main part of my diet my entire life. This last year I have changed, exercising, eating real good and my SD is getting worse. Quote Share this post Link to post Share on other sites
Sweet Posted October 10, 2019 Very strange coincidence I'm sure. I am sorry to hear this however. Quote Warm and gentle hugs, Pamela ISN Support Specialist International Scleroderma Network (ISN) Share this post Link to post Share on other sites
