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Lepanto1995

En Coup de Sabre ( scleroderma )

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Hi everybody, I've read this forum for very long time.

 

I'm from Chile and I've got scleroderma ( en coup de Sabre ). 

During some years ago I saw in my forehead ( precisely 5 years ago ) a lesion and now it's become much worse. I went a dermatologist and I didn't know anything about it. I'm very depressed and try not to think about it,  but it is very complicated. In my life I've only known 2 people with the same disease.

 

I'll show us some photos of my lesions.

 

Photo 1

Photo 2

Photo 3

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Hi Lepanto,

 

Welcome to these forums!

 

I'm sorry that you're suffering with en coup de sabre and are feeling depressed about it. There are a few treatments available, including  UVA1 treatment and I've found another thread En Coupe De Sabre, which may be of interest to you and which you may find helpful.

 

Kind regards,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Thanks!! 

 

I don't know if I'll be able to live with this condition during some time. I'm so depressed because some person understand me. 

 

I knew like this have worsted my life and appearance during every these years. 

 

I'm sorry for this declaration, but I needed to write this in a place where the people understand about it. 

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