kathygirl

Orange Peel Skin

5 posts in this topic

Hi everyone,

Does anyone know about orange peel skin. I have it on my arms and it is spreading. The rhumatoligist says it is not normal to have this with scleroderma. It looks and feels just like the skin on an avacado but not green. He says it is quite a severe case. Any info would be appreciated. Thanks. Kathy

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Is he recommending that you see a dermatologist? I am not an expert, but a quick search shows a variety of conditions with the symptom of "orange peel" skin. I would want to ask a dermatologist.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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I learned this quite by accident. Someone from my support group said her rhumatologist was looking for people with scleroderma for his research. He never really commented much about it other than to say that this is not something a person with scleroderma would have. I thought everyone with skin tightening must look like this. I googled orange peel skin and didn't like what I saw ,so will ask my rhumatologist when I see her in 2 weeks. I will tell you what she says.

Kathy

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Kathy,

I did find a personal story here on ISN about a woman that was diagnosed with Eosinophilic Fasciltis, a scleroderma like disease. She mentions an orange peel like skin. You might want to check out Beth R.'s story. The other link I provided is with Merek from our ISN page on Eosiniphilic Fasciltis. Of course I'm not a doctor, but both links do mention "orange peel" like skin. Hope this helps. Please let us know what you find out.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Thanks Janey for the info. I have read just some of the information and it sounds like me. If I understand this right it could be another form of scleroderma. Looks like the same kinds of meds are used. Just when I thought it was safe to crawl out from under the couch I got hit again. Kathy

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