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Nelly

New Here

7 posts in this topic

For a year and a half now, my general practitioner and rheumatoligst have been trying to figure out what is going on with me. I have a positive ANA, speckled pattern, Sed rate and CRP are high, everything else has been normal until last month when the Scl 70 antibody showed up positive (the first time that antibody had been included in the testing). It was 65 with anything less than 20 being normal.

 

Sclero wasn't even on the radar until this popped up. I don't have any skin involvement, to my knowledge. And of course my rheumatologist can't see me for another month so I am left to read and scare myself half to death. My main symptom that drove me to the doctor was joint stiffness and pain.

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Hi Nelly,

 

Welcome to the Sclero Forums. I'm really sorry to hear about your abnormal lab results and possible sclero diagnosis.

 

Pain was what moved me to see a doctor too 7 years ago. I now see a rheumatologist every 4 months, but life is still pretty good. :) Don't get to worried about things yet, just wait it out until you can see your rheumatologist. Here is a link on scleroderma that you can look at and review before you see him and that may help you come up with questions for him/her before you appt.

 

If you have any other specific questions prior to you visit please let us know and we'll try to help.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Welcome to the board Nelly. I am sorry its due to having scleroderma but if you have to have it, this is the best place to come to get support, vent, learn,ask questions and just about anything else sclero related.

 

Hugs,

Patty


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Welcome Nelly,

You have come to the right place for information and support!

Nan

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Nelly,

Welcome Darlin'! I'm glad you've decided to join us and post. Many of us know from personal experience what you are going through right now. The idea of thinking that it might be scleroderma, then reading about it can be scary. However, keep in mind that, in most cases, this is a difficult disease to diagnosis because many of its symptoms can be caused by so many other diseases or illness.

 

Most doctors do not make they diagnosis strictly on bloodtest results, but rather on a combination of test results and your physical symptoms. So be sure to write everything down, no matter what the ailment. I had a swollen knee for months and I thought it was due to my weight and 4 mile/day walks. It turned out to be one of the first sclero symptoms. Keep an on-going list of all your symptoms and take it in when you go in next month.

 

I know you're scared, but you must remember that sclero is not a death sentence. It's good to catch it early so it can be slowed down. There are so many new treatments out there right now, that you have lots of options that can improve your quality of life.

 

You've found a great place for support and information. Please do not hesitate to post with questions or just to vent. We're here for you.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Welcome to the Forums, Nelly. You have come to the right place as you can see from the great answers you have received so far. Relax as much as you can while you wait for your rheumatology appointment. The first one is apt to be filled with questions, examinations and routine tests, so it is easy to get caught up in it and forget to ask your own questions if you don't have them written down.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hi Nelly,

Just wanted to welcome you to the forums! I know it is very scary in the beginning. Don't believe everything you read will happen to you. This disease effects everyone differently. If your dr's are going to give you a sclero diag atleast they have caught it early. I have been living with this for 14 years, yes I have had issues, but I am still living with it!

 

Please keep on posting, we are here to suuport you!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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