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Sweet

Reflux

25 posts in this topic

Hi Guys,

 

Is your reflux a constant problem? Seems mine goes in spurts. I'm in one of those Major spurts right now. I can't seem to eat anything without misery. I have a Rx for Prilosec so I broke down yesterday and started taking it. I was just wondering if most of you took something on a regular basis, or just when needed.

 

Thanks,


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hey Pamela,

I take Prevacid 30mg once a day. I have taken all of the others and this one works the best for me. If I don't take it I am miserable. I was also n Zelnorm to help with the gastric emptying, but that has been pulled by the FDA. I have been on it since the day it came out. It works so much better than the Reglan and with out the super sleepies that Reglan gives me. I had just gotten my rx filled for three months supply when it was pulled, so I still take it right now. I haven't gotten in touch with my gastro to see what he will change me to yet. One trick my gastro told me was to take my Prevacid with my biggest meal of the day and it does seem to really make a difference in how well it works. My sypathies to you from a fellow sufferer.


Peace :)

Barbara aka relicmom1

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I take OTC Prilosec almost every day. If I don't take it for a few days the acid is pretty bad. However, the last two days it doesn't seem to be working quite as well unless I have something else going on. :blink:

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Hey Sweet,

 

I take 80 mg of Prilosec a day everyday for it. I don't want to even try not taking it 2x a day because I notice if I miss a pill I pay so for me its 2x a day every day.

 

I hope that you feel better soon now that your on the prilosec.

 

Hugs,

Patty

 

P.S. I have a rx for my prilosec because I take 40 mg caps. If you have good insurance maybe they will cover this. I know I get name brand because of the mgs of my RX but Tom gets 20 mgs so his are generic.


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Relic, Peggy and Patty,

 

Thank you so much for the feedback. Sounds like I probably should be taking my meds daily regardless of the lack of symptoms at other times. I just hate taking pills if I don't really need them. This is the first time I've had troubles with the reflux for almost a year, so in my mind, I keep thinking I can just take it when needed...better rethink that.

 

Thanks again.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Sweet~

I am with you!!! This reflux comes and goes without warning. I take Prilosec for 2 to 3 months, almost every night and then it seems to go away. I always know that it is there...lurking....but I need to enjoy the time that I am not suffering from it.

 

One thing that I definitly have noticed is that if I stop taking my NSAIDS, the reflux seems to die down. I am not sure if that is the case with everyone else. Do you take NSAIDS on a regular basis? Just a thought.

 

I sure am sorry that you are going through a bout of it right now. I guess we can just hope that it goes away SOON...until then....Prilosec to the rescue.


*WestCoast*

 

********

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Hey Erin,

 

No I don't take NSAID's on a regular basis. I'm a bit anti meds. The only one I take regularly is plaquenil. I am going to stick with the prilosec for a few days though it really helped the past couple of days. I just really try not to take anything if I don't have too.

 

Thanks for your input!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Sweet,

I think it's really interesting that you are anti meds and you are a nurse. I sometimes wish I were that way because I absolutely hate taking all of them. I've been tempted to not take them but then I am also not willing to find out what will happen if I don't.

 

I take two Zantac before bedtime, 40 mgs Nexium in the AM and Reglan 3x a day. I had to add the Zantac because I was having reflux more often.

I definitely cannot have soup or sauces before bedtime still, even with the meds.

 

Good luck and I hope you are feeling better soon. :)

Jennifer

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Thanks Jen,

 

I think part of being anti med (don't get me wrong I think they have their proper place) is that since I've been a nurse for so long, I've seen doctors immediately prescribe pills as the easy way out. I'm just not that way. I'm a natural organic girl by nature, so going the alternative route is my instinct.

 

I am feeling better today - thanks!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi all--

 

You might want to consider getting scoped for you esophogas before you decide to skip the Anti-Acid meds.

 

I know you hate meds but damage to the esophogas, lung irritation, etc can be asymptomatic. And the damage is much worse than anything prilosec will do to you. You have a much higher risk of cancer of the Esph. and also losing function of the Esophogas if acid is damaging it.

 

My reflux comes and goes with flares too. If I let up on the Prilosec say... I skip a day and then go down to 1 per day instead of 2. Sure enough it comes back pretty rotten, and then I swear I won't skimp ever again... but I always do.

 

If your scope shows a healthy esophogas perhaps you can continue to avoid this medication. But just make sure you're not getting silent damage.

 

Michael in Florida

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Hi Mike,

 

Sobering, but honest and straightforward information. I will give this some thought. I see my rheumatologist again in a couple of months and since he has mentioned before that I get scoped perhaps I will bring it up again and consent if he's inclined.

 

Again, Thanks.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Very interesting discussion. I take a prescription NSAID regularly for the inflammatory arthritis. When the NHS stopped prescribing Celebrex, my general practitioner started prescribing omeprazole (a proton pump inhibitor equivalent to Prilosec) to counter the irritation of the NSAID. At the time, I wasn't having (or hadn't noticed) any heartburn or reflux problems. About the same time I started having problems with Raynaud's was when the reflux started. Proton pump inhibitors actually prevent acid from being produced in the stomach, which is why you should take them before you eat. I was beginning to suffer more with reflux so the general practitioner tried a second dose of omeprazole in the evening. It had no effect. Then he tried having me NOT take the omeprazole for a day or two and the reflux went wild. He had me go back to one a day and referred me to the GI for an endoscopy which found the hiatus hernia.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Taking Prilosac on a regular basis IS when I need it. I have been taking 2 for years. I used to eat antacid tablets by the bottle and had then so that no matter where I was in the house I could just reach for one. Now I'm down to only two bottles, one in the kitchen and one by my bed. Both eating and lying down triggers it.

Betty

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Pamela,

I take my medications on a daily basis. I take Protonix- 40mg in the morning, Prilosec-20mg in the evening and Ranitidine up to 300mg. daily as needed. If I don't take them I am miserable!

Nan

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Good Point that Mike brought up. I have had acid reflux for 9 years. I have been on medication for it for that long and at this point my esophagus has no erosions and the GI told me that is because I have been faithful with the meds. I hate being on all of these meds too, but it least I can see the great benefits when I realize my espohagus hasn't eroded.

Nan

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Betty,

I also used to take antacid tablets several times a day until the Doctor warned me that some contain Aspirin. I had no idea.

 

My daughter no longer takes antacid tablets for her indigestion because of the risk for Reye's Syndrome in children. Kids should never take Aspirin.


*WestCoast*

 

********

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I'm like many of you, if I don't take my Prilosec twice a day, I get heartburn and nighttime reflux. Unfortunately, even that doesn't always solve the problem. I have rules that I live by and when I break them - I pay. Like last night, I couldn't resist that little piece of dark chocolate within an hour of bedtime accompanied by a couple sips of sherry. Man - did I pay for that. :( I fought reflux all night and finally fell asleep around 3 am only to be jerked awake at 4 am with choking and coughing, definitely caused by reflux. Yes, I was stilled elevated, but somehow had turned over to my right side which is a no-no when I'm having problems. It took a while to stop coughing and I finally got back to bed around 5.

 

So no matter what we do to avoid that nasty stuff, we have to find our triggers and eliminate them. Unfortunately, there are times that the temptation is just too great to resist. :rolleyes:


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hello to all of you. I have reflux bad!! I have slow motility as well. I take 2 Protonix 40 mg., twice a day and OTC Prilosec 20 mg., once a day. My Gastro. Doc's have tried me on Reglan, and a few other medications for the motility problems, but the side affects were to bad. I have suffered with this for at least 4 years. I couldn't live without these meds. I am suffering big time right now with the pains in the sternum area. If I am able to lay down, I use the heating pad, which seems to help a bit at times. Good luck Pamela, I hope you get releif soon.

 

Jackie S.

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Hi,

I have had reflux for many years. My GI Dr. scopes me every one to two years. Last time he took a biopsy. And the time before that he stretched the opening into my stomach. I take prilosec and I also have carafate liquid on hand for bad flares. It coats.

It was from the scoping that I found out I had CREST. If I remember right, its not a good thing to go on and off certain meds. You might want to ask your Dr. or pharmacy.

I just wanted to add one more thing. I sleep with the head of my bed elevated. If I ever lay flat, I have major problems.

Thank you all for such good information.

Nanna

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Betty, talk to your doctor about you still taking anti acid tablets. He will prescribe something else to help you out. My gastro doctor got very upset when I told him I would awaken in the middle of the night to severe pain and take a couple of antacid tablets and when they didn't work quickly I would take a couple more. At that point I was put on the Reglan. I have lessened my doses on occasion like Mike. My reflux comes back with a vengence. I use to take 4 / 40 milligram Nexium and 4 of the Reglan daily. I now take only 3 or the Nexium and 2 of the Reglan. I always save a Reglan for just before going to bed. No nocturnal heartburn. Unless I eat Friday nite fish F R Y . I am in pain early on. So I make sure to take my meds well before eating and won't forget it before going to bed.

 

Pamela. I don't know of any natural meds to control severe heartburn. Or the boiling acid that comes up from your stomach. If you know of something let me know. Then maybe I could eat a small lunch and bend over to pull weeds. Ha! Good luck in your decisions. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi, I have had GERD for many years but lately I've been having a dickens of a time with it at night. I added more height to my bed and believe it or not I put a hole in my bottom sheet from pushing myself up all night after I'd slid down. I thought that the 40 mg. of Nexium that I was taking a day was the highest dose but I see that Sheryl takes more. Didn't know you could do that so thanks for posting that Sheryl. I will contact my Dr. this week to find out the next step in meds. I wake up constantly with pain in my back from the acid and add that to 50 hot flashes a night and it doesn't add up to much sleep. :( Oh, also the pain on top of it. Well, you all know what I'm talking about. I have a prscription for Celebrex but that would be the icing on the cake for Gerd so I don't bother to take it.

Hugs, Piper

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I am not a medical professional, but I would caution anyone against increasing the dosage of their prescription medications without the advice of your doctor. It is easy to look around you and see others taking medicines you aren't taking and think, "Hey, I should have that, too!" or see that someone has a different dosage prescribed and wonder whether they should be taking that dosage, too. Many things have to be taken into consideration before a doctor prescribes for us: age, weight, other conditions, interactions with other medications. Please consult your doctor about any changes you want to make in your dosage of a prescription.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Great Advice Carrie!

I've had two different prescriptions to stop working or not work. The first one worked great for a year then stopped so I consulted my rheumatologist for another. He gave me Protonix, which @ 2 a day still didn't keep the heartburn under control. Finally, he prescribed two Prilosec a day and that works about 90% of the time. The other 10% of the time, I'm always tempted to take another one, but two is already more than the normal dosage so I have experimented with some stuff and have found a couple of food items that actually settle my stomach until it's time for the next dose.

I guess it's a matter of "keep looking" until you find something that works for you.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Carrie & Janey, I guess that came out wrong. I would never take anything or increase anything without being told to by the Dr. I just didn't know that they could prescribe more of them. I'm going to call tomorrow and see what he has to say. It's nice to know that when one drug stops working, something else may do the trick.

Take care,

Hugs, Piper

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Just an update. First of all I really appreciate every one's input!

 

I have broken down and have been taking 20 mg of Prilosec per day. It's been helping. There is an natural alternative treatment - someone asked me about it and if you want to PM me I will tell you what it is. I'm waiting to talk with my doctor about it first. Until then I'm taking the prilosec!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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