Sweet

Reflux

25 posts in this topic

Hi Guys,

 

Is your reflux a constant problem? Seems mine goes in spurts. I'm in one of those Major spurts right now. I can't seem to eat anything without misery. I have a Rx for Prilosec so I broke down yesterday and started taking it. I was just wondering if most of you took something on a regular basis, or just when needed.

 

Thanks,


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hey Pamela,

I take Prevacid 30mg once a day. I have taken all of the others and this one works the best for me. If I don't take it I am miserable. I was also n Zelnorm to help with the gastric emptying, but that has been pulled by the FDA. I have been on it since the day it came out. It works so much better than the Reglan and with out the super sleepies that Reglan gives me. I had just gotten my rx filled for three months supply when it was pulled, so I still take it right now. I haven't gotten in touch with my gastro to see what he will change me to yet. One trick my gastro told me was to take my Prevacid with my biggest meal of the day and it does seem to really make a difference in how well it works. My sypathies to you from a fellow sufferer.


Peace :)

Barbara aka relicmom1

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I take OTC Prilosec almost every day. If I don't take it for a few days the acid is pretty bad. However, the last two days it doesn't seem to be working quite as well unless I have something else going on. :blink:

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Hey Sweet,

 

I take 80 mg of Prilosec a day everyday for it. I don't want to even try not taking it 2x a day because I notice if I miss a pill I pay so for me its 2x a day every day.

 

I hope that you feel better soon now that your on the prilosec.

 

Hugs,

Patty

 

P.S. I have a rx for my prilosec because I take 40 mg caps. If you have good insurance maybe they will cover this. I know I get name brand because of the mgs of my RX but Tom gets 20 mgs so his are generic.


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Relic, Peggy and Patty,

 

Thank you so much for the feedback. Sounds like I probably should be taking my meds daily regardless of the lack of symptoms at other times. I just hate taking pills if I don't really need them. This is the first time I've had troubles with the reflux for almost a year, so in my mind, I keep thinking I can just take it when needed...better rethink that.

 

Thanks again.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Sweet~

I am with you!!! This reflux comes and goes without warning. I take Prilosec for 2 to 3 months, almost every night and then it seems to go away. I always know that it is there...lurking....but I need to enjoy the time that I am not suffering from it.

 

One thing that I definitly have noticed is that if I stop taking my NSAIDS, the reflux seems to die down. I am not sure if that is the case with everyone else. Do you take NSAIDS on a regular basis? Just a thought.

 

I sure am sorry that you are going through a bout of it right now. I guess we can just hope that it goes away SOON...until then....Prilosec to the rescue.


*WestCoast*

 

********

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Hey Erin,

 

No I don't take NSAID's on a regular basis. I'm a bit anti meds. The only one I take regularly is plaquenil. I am going to stick with the prilosec for a few days though it really helped the past couple of days. I just really try not to take anything if I don't have too.

 

Thanks for your input!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Sweet,

I think it's really interesting that you are anti meds and you are a nurse. I sometimes wish I were that way because I absolutely hate taking all of them. I've been tempted to not take them but then I am also not willing to find out what will happen if I don't.

 

I take two Zantac before bedtime, 40 mgs Nexium in the AM and Reglan 3x a day. I had to add the Zantac because I was having reflux more often.

I definitely cannot have soup or sauces before bedtime still, even with the meds.

 

Good luck and I hope you are feeling better soon. :)

Jennifer

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Thanks Jen,

 

I think part of being anti med (don't get me wrong I think they have their proper place) is that since I've been a nurse for so long, I've seen doctors immediately prescribe pills as the easy way out. I'm just not that way. I'm a natural organic girl by nature, so going the alternative route is my instinct.

 

I am feeling better today - thanks!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi all--

 

You might want to consider getting scoped for you esophogas before you decide to skip the Anti-Acid meds.

 

I know you hate meds but damage to the esophogas, lung irritation, etc can be asymptomatic. And the damage is much worse than anything prilosec will do to you. You have a much higher risk of cancer of the Esph. and also losing function of the Esophogas if acid is damaging it.

 

My reflux comes and goes with flares too. If I let up on the Prilosec say... I skip a day and then go down to 1 per day instead of 2. Sure enough it comes back pretty rotten, and then I swear I won't skimp ever again... but I always do.

 

If your scope shows a healthy esophogas perhaps you can continue to avoid this medication. But just make sure you're not getting silent damage.

 

Michael in Florida

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Hi Mike,

 

Sobering, but honest and straightforward information. I will give this some thought. I see my rheumatologist again in a couple of months and since he has mentioned before that I get scoped perhaps I will bring it up again and consent if he's inclined.

 

Again, Thanks.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Very interesting discussion. I take a prescription NSAID regularly for the inflammatory arthritis. When the NHS stopped prescribing Celebrex, my general practitioner started prescribing omeprazole (a proton pump inhibitor equivalent to Prilosec) to counter the irritation of the NSAID. At the time, I wasn't having (or hadn't noticed) any heartburn or reflux problems. About the same time I started having problems with Raynaud's was when the reflux started. Proton pump inhibitors actually prevent acid from being produced in the stomach, which is why you should take them before you eat. I was beginning to suffer more with reflux so the general practitioner tried a second dose of omeprazole in the evening. It had no effect. Then he tried having me NOT take the omeprazole for a day or two and the reflux went wild. He had me go back to one a day and referred me to the GI for an endoscopy which found the hiatus hernia.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Taking Prilosac on a regular basis IS when I need it. I have been taking 2 for years. I used to eat antacid tablets by the bottle and had then so that no matter where I was in the house I could just reach for one. Now I'm down to only two bottles, one in the kitchen and one by my bed. Both eating and lying down triggers it.

Betty

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Pamela,

I take my medications on a daily basis. I take Protonix- 40mg in the morning, Prilosec-20mg in the evening and Ranitidine up to 300mg. daily as needed. If I don't take them I am miserable!

Nan

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Good Point that Mike brought up. I have had acid reflux for 9 years. I have been on medication for it for that long and at this point my esophagus has no erosions and the GI told me that is because I have been faithful with the meds. I hate being on all of these meds too, but it least I can see the great benefits when I realize my espohagus hasn't eroded.

Nan

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