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dimarzio

Corona Virus COVID-19

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How much higher is our risk from this pandemic?  In the UK there have been 4 deaths reported and all seem to be in their 60s, 70s and 80s.

 

It seems that  those with underlying health conditions or compromised immune systems are at significantly greater risk than the 3.4% average so far.

 

The virus attacks the lungs, so anyone with a lung condition needs to be extra careful as should anyone taking immunosuppressants.  Is there a case for stopping or reducing these, perhaps?

 

Keep  safe everyone and look after yourselves.

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Hi Dimarzio,

 

Well, I'd be lying to you if I said I wasn't a bit concerned about the COVID-19; I've actually got lung involvement and take immunosuppressants, so theoretically, I suppose I could be one of the "at risk" cases.

 

However, I'm not really the panicking type and my attitude is that I could die anytime, anyway (the old "falling under a bus" syndrome etc.) That doesn't mean that I'm not taking the thing seriously, but I do think that taking sensible precautions (eg washing hands frequently etc. ) will hopefully avoid my catching the virus. I wouldn't advocate stopping the immunosuppressants (in my case that would probably have a worse outcome for me than the remote possibility of catching the virus), but of course if you are concerned about discontinuing them, then the best person to advise you would be your scleroderma consultant.

 

We have two holidays booked over the next few months and I fully intend to take them as normal, unless we're told we can't go by the airlines and countries involved. I also have hospital appointments booked, which necessitates my travelling to London, which I shall attend as normal (unless anything happens to the contrary.) A total of four deaths is not particularly excessive at this time (more people are killed on the roads and by other means than that) and I certainly shan't be stripping the supermarket shelves of toilet paper or the other ridiculous extremes that the "shopping for a siege" brigade seem to indulge in! :wink: :happy:

 

Kind regards,


Jo Frowde

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Good Morning Jo,

 

It could be that being on immuno-suppression may help. Some of the most serious symptoms of COVID-19 result from an immune system that is on the rampage rather than a lethargic one. Chinese scientists found an extreme immune system response called Cytokine Storm, a flood of immune cells and biochemicals they produce tears through lung tissue.

 

Let's all hope that this outbreak can be controlled and that our Governments are strong enough to take the necessary containment actions swiftly.

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Hi,

Has anyone with Systemic Sclerosis been diagnosed with the Coronavirus? If you have, what symptoms did you experience?

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On 3/9/2020 at 10:22 AM, dimarzio said:

How much higher is our risk from this pandemic?  In the UK there have been 4 deaths reported and all seem to be in their 60s, 70s and 80s.

 

It seems that  those with underlying health conditions or compromised immune systems are at significantly greater risk than the 3.4% average so far.

 

The virus attacks the lungs, so anyone with a lung condition needs to be extra careful as should anyone taking immunosuppressants.  Is there a case for stopping or reducing these, perhaps?

 

Keep  safe everyone and look after yourselves.

I have had it since 87, my lungs at a 40% capacity.  I am not worried about the catching the virus, whatever happens, happens.  I am more worried about the supply chain being disrupted by people hoarding.   Too much negative stuff in the media all the time, I think if you take normal precautions you will be fine.  I still go out shopping, I just make sure I wash my hands after and disinfect my phone. Other than that, I am not letting the fear of this rule my life.  This will end and we will be back to normal again.  Just hang in there and try not to let all the negative news get you down.

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Good for you, Ronald! It's a shame more people don't have the same common sense approach as you have.

 

In the UK we have the same panic stricken situation and the ridiculous thing is that there are no food shortages; it's simply shoppers rushing round buying obscene amounts of everything.:sad:

 

Best wishes,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi everyone, I am scared about this whole situation, not so much for me (even though I'm listed as OLD now!!!) but for Gareth.  Along with the UCTD,  he's got the immune deficiencies and isn't due for his monthly IVIg till this coming Thursday.  I know his immune system is running on empty.  Everything has been shut down in our area for the past 10 days, he is with us, but he doesn't understand the situation.  I keep telling him people are getting sick - all over the world.  He's been to Italy, England and Ireland,  so he sees how they are experiencing the same *stay at home* procedures.  

 

Please, stay home and stay healthy everyone. 

My prayers are with all of us.

 

Margaret

Mom to Gareth,  DS/ASD

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In the UK, the health service are about to issue 1.5m letters to those they consider at risk. I wonder how many of us will receive one?  Not expecting one as my general practitioner and rheumatologist seem to think SSc is just a minor inconvenience.

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Hi Dimarzio

 

I actually received a text today from the NHS telling me to stay at home for 12 weeks (obviously they consider me to be a risk.) I do agree and was self isolating anyway (obviously things have galloped on a bit since we first posted on this topic.)

 

It wouldn't surprise me if the whole UK were forced into lockdown, as so many people seem to regard the advice to "stay at home" as a sort of extra Bank Holiday (witness the crowds flocking to the coastal resorts and countryside - I bet the locals were thrilled about that!!)

 

Kind regards,

 


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Margaret,

 

I can understand why you're very worried about Gareth and scared that his vulnerability will make it so difficult to keep him well.

 

I'm wishing you and the family (and in fact all our members) the very best and hoping we can all come out the other side successfully.

 

Best wishes to you all,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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