WestCoast1

Hiatal Hernias....

21 posts in this topic

Hello Sclero Family,

 

I was wondering if anyone suffers from Hiatal Hernias? While doing a Barium Swallow, the doctor found one of these and explained to me that it can definitely cause GERD, and also be the reason for Anemia. He needs to study the x-rays more, but this came as a surprise!

 

I guess my question is...is this common among Scleroderma patients, or not?

 

Thanks for your input on this!


*WestCoast*

 

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I have a Hiatal Hernia. It was diagonosed on an Endoscopy I had in conjunction with my watermelon stomach. I used to have a lot of esophageal problems but since I started taking Nexium twice a day, those symptoms have subsided. Well except for the watermelon stomach....I still have that and I have to have my stomach cauterized monthly to control any bleeding.

 

April

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Erin,

 

I have one also. My GI doctor told me that there were "very common" in systemic scleroderma. Mine was found in an abdomen CT and again in the barium swallow.


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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I was diagnosed with one in the late 1960's. Only recently have autoimmune problems presented themselves.

 

Betty :rolleyes:

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Well Sweet, I really don't know if there is a plan of treatment. I just had my Anemia checked to see if it is getting worse. I am guessing that if it is worse than it will be attributed to the hernia. If so that will need to be taken care of.

 

I would be interested to know what others have done to take care of a hernia and has it helped your reflux?


*WestCoast*

 

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Erin,

 

The main thing I do to prevent the hernia from being a problem is to eat small meals. I use to eat until I was stuffed, but no longer. Talk about serious reflux and just outright throwing up. Eating small meals has helped tremendously. Also I don't do anything that requires me to bend over for at least an hour after eating. With the hernia we don't have a good closure at the stomach input so it's easy for things to just come right back up. I don't wear tight waist bands either.

 

I'm not anemic so it hasn't affected me in that way. It's one of those things I've learned to live with.

 

Big Hugs,

 

Janey


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Thank you guys! Your the best. I was worried there for a while, but now I am okay with it and movin on.

:)

 

I will definitely use the great tips you all had for keeping the reflux at bay!


*WestCoast*

 

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Hey Erin

 

I was diagnosed with a hiatus hernia last year when they were trying to establish what was wrong with my esophagus. I have been on tablet to help with the symptoms for some time but as things are progressing I am off to have it repaired in the near future if a gastroscope shows there is not to much Scleroderma damage to the area.

 

I am not sure how long before they found it that I had it but I do know that it makes reflux alot worse then it needs to be.


Kindest Regards

 

Sharon

 

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

 

a little bent and broken and almost beyond repair!

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OK...add me to this list :P Mine was found when they did my first endo. I have to have endos repeated every 6 months or so to stretch the esophagus (and I have watermelon stomach) and with each one, the hernia has grown. It causes pain when I eat sometimes. I have Severe reflux with some damage to the esophagus (even taking Prevacid). In the past, I've also taken Nexium, Zantac, Prilosec, and Axid. I have also had to begin wearing elastic waists because I can't have anything tight on.

 

Remember.....One day at a time :)


Peace :)

Barbara aka relicmom1

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I have one, too. My gastroenterologist said that 30% of people over 50 have a hiatus hernia (in the US, it seems to be called hiatal hernia, over here I generally hear hiatus hernia). Like Janey said, the worst for me is bending over with a full stomach. My occupational therapist gave me a very cool picker upper which has helped considerably and I now get hubby to clean up the little stuff I drop while preparing dinner. All three of my doctors have told me to lose weight as the excess poundage exerts pressure on the diaphragm. I also dress in very loose clothing, sleep on a wedge pillow and try to avoid eating for several hours before I lie down which I try (not very successfully) to sleep on my left side.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Count me in on this one. I have had the hiatal hernia for at least 4 years that I know of. I don't know if they eventually go away or not. I'm just careful like the rest of you in that I eat smaller meals and try to stay away from fried greasy foods. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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