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gordon

Results

4 posts in this topic

Hi gordon here,finaly 5 weeks after my biopsy I had a phone call today it seems I have localised scl, and my treatment is to start as from tomorrow. i was first told that I would have a large dose of steroids infused once a month for three months, thats out the window - i now go in wednesday thursday and friday. my consultant has told me it will make things a bit better, i will then have to ask her about the methotrexate, will post tomorrow,

fondest regards

gordon x

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Hey Gordon,

 

Thanks for taking the time to let us know the results. I'm surprised at the aggressive treatment plan, but I'm sure I don't have a clear picture of all of your symptoms. Good Luck in your treatments and please do let us know how things are going.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Gordon,
Thanks for the update. Did the doctor mention what type of localized? Based on the treatment is does sound like morphea. I found this research abstract on our morphea page that sounds like what you'll be doing.

Pulsed high-dose corticosteroids combined with low-dose methotrexate in severe localized scleroderma.
http://www.ncbi.nlm.nih.gov/entrez/query.f...&query_hl=1


It states "These data suggest that pulsed high-dose corticosteroids combined with orally administered low-dose methotrexate therapy is beneficial and safe in the treatment of patients with LS."

Looking forward to hearing more about your treatment and how you do with it.

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Yes, thanks for letting us know the results of your biopsy, Gordon, and thanks to Janey for the link. I am sure you must be both relieved and anxious at the same time. Do keep us abreast of your treatment progress and know we are here when you need someone to talk to.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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