Louxx

Explaining Linear Scleroderma

7 posts in this topic

i got a new summer job in a shop recently. I was asked to fill out my health form today, so if they have any questions about my scleroderma, can anyone help me on how to explain what exactly it is? i'm not very good at explaining things.

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Are you sure you want to disclose this (if it is not too late)? Not sure about Ireland, but in the UK, you are not required to disclose a disability, though if you choose not to do so and later have a grievance against the employer for discrimination based on a disability, you may lose ground against the employer. The question is how much your linear scleroderma will affect your ability to do the job and whether allowances should be made for you because of your condition. If you decide to tell them, or have already, keep it simple and to the point, giving them the information as it may affect your ability to do the job. My gut instinct says that for a summer job, it may not be worth the trouble of explaining it at all, but only you know what you have to deal with.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Louise,

 

This topic is interesting because just last night I watched a program on the Americans with Disability Act and handicap parking. It sounded like here in America you do need to disclose for the reason that Carrie mentioned about future discrimination problems. When I went to work for a children's museum a couple of years ago, I disclosed that I had systemic and that I would be limited in many physical aspects. It didn't seem to bother them because they still hired me.

Whatever you do decide, here's our page on Linear. You might find a couple of sentences there that you can use. The first couple of sentences look good.

Good luck! I hope the job goes well and you have fun with it. Let us know.

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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I have a handicap-parking hanger but I don't collect disability. Are all people with scleroderma considered disabled?

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Peanut,

 

I have a handicap parking sticker also, but I don't collect disability either. The ADA is primarily to protect the disabled from discrimination but is separate from social security disability definitions of "disabled". So yes, we are protected by the ADA but that doesn't mean we qualify for SS disability. That's a completely different ballpark as many have and are finding out.


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Thanks for your replies. So far my managers haven't said anything back to me about wondering what scleroderma is.

 

On my health form it said "have you ever had/have any skin diseases or rashes?" I ticked yes and wrote scleroderma.

 

So as far as they know, it's just a skin problem. which is fine with me since my scleroderma doesn't limit me in any way in my job.

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