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Clementine

Vitamin B Complex

24 posts in this topic

I have taken Vitamin B Complex a few times recently and I have so much more energy on days I take it. What are your thoughts on taking vitamins when you have Scleroderma? I know some doctors have said not to take supplements, just get the nutrients from your food (with the exception of Calcium and Iron).

Thanks,

Jennifer

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Hey Jen,

That is a GREAT question. I am not really sure what I should be taking, but I do take....Acidophilus and Flax Oil,. I was taking a liquid multi, but when it ran out, i just never got any more.

 

A 'B' vitamin sounds good. More energy would be awsome!


*WestCoast*

 

********

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Hi Jen,

 

I take B vitamins, and lots of them. I am a firm believer in supplements. I take MANY! Both my primary care physician and my rheumatologist are in full support of this. My list is long! If you want to know what I take you can send me a p.m.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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I get vit B12 shots about twice a month. I also take fish oil pills 4 a day as well as probiotics. The thing that helps the most is folic acid, if I skip a day I am noticably tired. It also stopped my restless leg problem, the other night I forgot to take my pill and my legs drove me crazy. I am also eating much healthier foods. About a year ago my blood pressure was extremely high the top number was over 200 now my blood pressure is 110over 60. My alternative therapist has really helped alot in this regard. Depending on how Im feeling she makes adjustments in my diet and vitamins. I remember my alternative therpaist said there are some supplements, vitamins not to take when you have scleroderma because they contribute to the building of collegen. Unfortunately I can't remember which ones. Kathy

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One thing for sure that I don't take now are immune enhancers. During cold and flu season, everyone is taking these supplements and drinking the teas.

 

Since our immune system is over active, I think that these types of supplements might be counter-productive. I have yet to ask the doctor about what he thinks, but I might at my next visit...if I remember :mellow:


*WestCoast*

 

********

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Good morning all! I take a Vitamin B Complex and I think it really helps. I also take a multivitamin, fish oil, an antioxidant supplement for eyes, and calciumw/vit.D. I also have restless legs and I've not heard about folic acid helping. I'll have to try it.


Peace :)

Barbara aka relicmom1

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Sweet & Erin,

So echinacea is bad, but what about vit C?

 

nutty peanutty


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Taking vitamin C along with it can help with absorption of iron. Any excess vitamin C will be excreted. On the other hand, vitamin C is acidic, so when you take it may make a difference if you have a problem with reflux.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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WOW - It's interesting how rheumatologists have different ideas on things. Mine told me NOT to take Vitamin C because it helps in the production of collagen and since we already do quite a bit of that already, we don't need the help. I did find this on MedlinePlus about Vitamin C:

 

"Vitamin C is required for the growth and repair of tissues in all parts of your body. It is necessary to form collagen, an important protein used to make skin, scar tissue, tendons, ligaments, and blood vessels. "

 

I was adviced not to take a Vitamin C supplement and that I would get enough of what my body needs from a healthy diet. I do take extra Vitamin D and E and calcium. I tried taking a multivitamin but it makes me jittery. Sounds like many of you benefit from B vitamins. HUM - maybe something to look into.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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The way I look at it, my immune system is attacking my healthy "self" so why should I take supplements to enhance my goofy immune system? I truly wish the warning about echinacea was made with more emphasis and more often!

Laurie AKA bioteach

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Hi, For a while I was taking an ester C tablet with my iron at bedtime. My Gerd got much worse and I couldn't figure out why. When I stopped the C it improved. I thought that the Ester C was supposed to be less acidic but I guess it's still too much for my system.

 

I was told by my pharmacist that I should be taking a calcium tablet if I am on a P.P.I for Gerd long term. My Dr. has never mentioned it to me and I'm not going to be seeing him any time soon, I hope. Has anyone else been told this? Just wondering.

Hugs, Piper

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Hi Jennifer,

I too take vitamin B and the result is the same as yours... I feel more energetic! I sure notice the alternative if I don't take it. I also take fish oil capsules, along with a multivitamin. My husband also has the same results as we do.

 

Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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What's a PPI?

I take extra calcium + Boniva cause I'm on prednisone and that causes bone loss. One positive is with the flax and omega 3 my nails have never looked more fabulous.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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Hi Peanut, P.P.I is short for proton pump inhibitor drugs like nexium.

Hugs, Piper

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bio.teach2, how are we really sure what our immune system is attacking is really "healthy"? Who knows, maybe our whole bodies are becoming contaminated with the things we consume and breathe that we shouldn't be such as pesticides etc. I am going to start my supplements again, I have already taken Glucosamine, chondroiton, MSM, and Fish Oil and a muti vitamin off and on. I take them for a few months and then get lazy. I feel better on the supplements.

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I take B 12 and I find it really makes a difference in my energy level. Many years ago my blood test showed that I had low B 12 and I've been taking B 12 ever since. I also take an iron supplement - and a probiotic. The iron and B 12 help my energy and the probiotic helps my stomach a lot.

Annie N.

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Hi Jen,

I was told to take vitamin supplements by my primary care physician, but never by my rheumatologist. He seems to have a grip on what my system is already going through and he also knows how many pills I have to take on a daily basis.

 

So I am in the middle about this one. I won't take anything that boosts the immune system because of our immune system being overactive as it is. Before I knew about my autoimmune illness I was taking a natural "cold remedy" that boosts my immune thinking that I would finally feel better...it only made my glands more swollen and I felt 10 times worse.

 

Now I stick to just the basics...Iron and and B vitamins that deliver the Iron properly. I do take acidopholus for the tummy and amino acids since I dont eat too much meat.

 

This might not be very helpful since everyone needs something different, but thought I would let ya know anyhow. :)


*WestCoast*

 

********

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Hi everyone

This is a very usefull discussion!

Here in the UK at the Sceroderma unit at the Royal Free in London,I was actually given a list of supplements to be prescribed and taken continuously as they had been clinically proven to be beneficial!One of the absolute must takes they insist on is the fish oils,ideally 10g a day!Which is a huge amount.But I now get it from my general practitioner on prescription.I notice a huge difference in my skin and joints when I keep up the dose.Apparently it also helps to remove some of the free radicals and by products of sclerosis that we have floating around after inflammation!Also Vitamin E is very good for us.

Phew I need to rest my brain after that!

love to you all

Alexandra

x

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I never knew there was an RX for fish oil. There are several instances when it's not recommended to use. A few are if you are on a beta blocker, blood thinner or if you have an under active thyroid. I am still going to ask my Dr. about it.

 

Thanks Alexandra!

Jennifer

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I find the variation in advice ( or lack of it ) given by the doctors very confusing - so much for evidence based medicine! Alexandra , I was interested to read in your post that you got a list of supplements that you should be prescribed and take. yet I'm also in the UK (but not at the Royal Free) and have never been given any guidance on this. I have done my own research and after reading papers on the management of systemic sclerosis by Prof. Denton have started taking the fish oil etc recommended. I do though find it rather worrying that some rheumatologists are not aware of this advice or if they are choose not to pass it on!

Lizzie

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