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Personal Experiences Please!

4 posts in this topic

Hi Everyone,

I haven't posted here for awhile as I have had major computer problems. I have so much to catch up on.

 

For the last 6-8 weeks I have felt almost normal, only a bit of fatigue, then suddenly the last few days I feel as though I have been hit by a truck.

 

I have had a lot of pain/soreness in my joints of all my fingers, even in the soft tissue areas of the fingers. I woke up this morning and feel as though I have been hit by a hammer in one of my eye sockets :blink: , all around the bone and eyelid is excruciating and when I blink it is sore too.

 

I had a shower this evening and something weird happened. As the water was hitting my hands and wrists I felt a tightening on my wrists mainly the left one. The skin felt as though it was been pulled back, it looked ok, no redness or anything. Could this be the beginning of skin tightening?

 

The weird thing is I have only 2 swollen fingers (not severely) on my right hand which I have had for a few months now, so I have been a little surprised to feel tightening on the wrist area

 

I have read a lot on skin tightening/hardening and I'm not sure whether that refers to the soft tissue under the skin that feels hard or does it mean like hard callous like skin?

 

Any imput would be greatly appreciated and also personal experiences with skin tightening would be of benefit.

 

Many thanks to you all in advance and it is good to be back!

 

Kind regards

Celia ;)

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Hi, Celia. Glad to see your computer problems have been resolved. It is funny you mention that you noticed your wrist tightening in the shower as I have seen several members notice tight skin in the shower first. To answer your question, fibrosis is tightening/hardening in the layers of skin, not the flesh under the skin, though edema can make the tissue seem harder than normal.

 

I first experienced tight sausage fingers, but I did't know about scleroderma when this was happening. The next place was the skin on the back of my legs from ankle to mid calf. The skin is tighter, very smooth, shiny and hairless. I still get hair on my shins. More recently there is a mask of tightness around my eyes and cheeks and also around my mouth, along with radial furrows. I find myself wanting to 'wash off' the tightness in my face.

 

Hope you can find something useful in the site's page on Skin Fibrosis.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Sounds like you are having a flare. That is just how mine start out. The length of time it lasts varies with me. I have had skin tightening come and go. I think it's a bit different with everyone. I see Jefa gave you a good link. I hope you have time to review it.

 

Hang in there.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Celia

 

I have Diffuse Scleroderma and so have a lot of skin tightening. It is on my arms, legs and face. It is not hard callous's, it is just very tight. When people touch me they say I feel like plastic. It also gets very itchy. I have limited wrist movement and tightness in my knees, elbows and ankles. My rheumatologist is trying different drugs to try to loosen it up but so far no better yet. Hopefully you won't get this bad, I think mine is because it is the diffuse variety.

 

As a fellow aussie I missed seeing you on this site, there are not many of us here.

 

Hope you're feeling better

Helen

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