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Diana Miller

Just Got Home From The Dermatologist..

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Ya know doctors really tick me off. Let me elaborate..

 

The last time I had gone to the doctor they gave me a cream that would 'bleach' my spots, and help control any new ones that may develop. So, 3 weeks later I return to the dermatologist to get results from my blood work, and for him to recheck the spots.

 

I did not use the cream because I have been there and done that.. and cosmetically there is nothing they can do to fix my skin.(I've gone through the bleaching stuff since I was about 15)

He looked at my spots and says YES! That cream is working great!! You can hardly see it at all! I just about laughed in his face.. in fact all I really could say was 'lol okkkk sure'. So I'll be looking for a new dermatologist..

 

My blood results came back today, he said my Lyme Disease was .90 and the rest of my results were 1.00 (Borderline negative, borderline positive) Why do they automatically say you are negative when you're borderline positive!

 

It may seem as if I wished I had systematic sleroderma.. and you know there's a part of me that wished I did. I hurt everyday.. its painful to play with my children, and I can't do everything that I wished I could with them, even getting off of the floor kills my knees.

 

The dermatologist now is considering me Morphea only.. and all he said was 'see you in 6 months'. Am I going crazy? Am I making my symptoms out to be something they aren't? Is the pain something I am causing mentally somehow?

 

My joints are hurting, my muscle spasms hurt.. what other route is there to take? Why is this doctor acting like I just have a rash?

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Hello, Diana. I presume you mean systemic scleroderma. I sincerely hope you don't have it, though morphea is bad enough. I do think it would be a good idea for you to get seen by a rheumatologist, rather than a dermatologist. Your pain could be coming from any number of conditions and a rheumatologist would be more likely to see the broader spectrum of symptoms in the right light.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Diana,
YOU know it's not in your head. Not being able to get up off the floor without feeling pain tells you that it is real. So I definitely agree with Carrie. You need to see a rheumatologist. There are so many rheumatic diseases that can cause painful joints, muscle, etc. and the rheumatologist is the physician that specializes in treatments of these diseases. Your dermatologist is only skin deep.

Check your insurance and see if you require a referral. If you don't, then make an appointment to see a rheumatologist. It is does, then ask your primary care physician or dermatologist for a referral. If you need help finding a rheumatologist in your area here's a page you can search for a rheumatologist. Find a rheumatologist. You can find this link and other helpful information on our Scleroderma Specialist page.

I hope you get some help soon. I certainly wouldn't be satisfied with what you're getting from your dermatologist.

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Dianna,

 

Thanks for the update. I can certainly understand your frustration and I would be in search of a new dermatologist doctor as well.

 

You are not crazy. It's only natural to want to see some sort of test come back positive to validate what you are already experiencing. There are many here just like you!

 

Hang in there.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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I've also started doing my own research (instead of depending solely on doctors) They have a quiz for Fibromyalgia, on the quiz I answer 18 out of 20 on the symptoms I was having. I will bring this up the rheumatologist.

 

I want to thank every one of you for all of the support, and especially for listening to me rant.. even when you didn't have to.. I really appreciate it.

 

-Diana

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