• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Sherion

Shoulder

9 posts in this topic

Hi everyone! I don't think this has anything to do with scleroderma but I have a few questions. For several months my left shoulder has been bothering me to the point I can barely move my arm. Two doctors told me it was a problem with my rotator cuff. I finally had an MRI and the orthopedic doctor said I have a "frozen" shoulder and need intensive therapy. I had just finished a month of therapy already and it seemed to make it worse. Now he wants me to have more indepth therapy. None of the doctors have said that it could be related to sclero. My question is, have any of you ever had frozen shoulder? If so, how was it treated and how is your shoulder now? They wanted to give me cortisone shots, but I'm allergic to cortisone. Thanks for any input any of you can give me.

 

Sherion

Share this post


Link to post
Share on other sites

Hi Sherion,

 

A friend of mine had "frozen shoulder". She underwent intensive therapy, and believe me she felt WORSE before she felt better. She did have one injection of steroids and now she is doing great!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Sherion,

 

I am sorry to hear that you are in pain right now.

 

I had a bad shoulder a few years back. I am not sure if it was a "frozen" shoulder, but I did have an x-ray and it showed nothing unusual. I couldn't raise my arm or stretch it to the side. It was always in pain so the doctor recommended therapy which didn't seem to work, however, a few months later I gained allot more movement. After I started on Plaquenil, the pain seemed to go away slowly. I had considered Cortisone shots, but just never took that route. I think that with the help of a professional therapist/doctor, you might find some relief over time.

 

As for it being connected to Scleroderma....I am really not sure.


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

Thanks Pamela and Erin for the responses. My doctor did say that therapy would be painful. It must be true because he voluntarily gave me a prescription for a very strong pain med. I'm sure not looking forward to the therapy!!!!

 

Sherion

Share this post


Link to post
Share on other sites

Hi Sherion,

 

I had a flare up in February with shoulder tendinitis and partial tear in the rotator cuff. I had steroid shots in both shoulders and I did not do therapy because of cost. I just slowly worked on it taking Mobic for inflammation. It took four months of patience. I never had a frozen shoulder. I hope you feel better soon. Heat helped me alot. Susie54

Share this post


Link to post
Share on other sites

Thanks Susie, I wish I could have the injections and be done with it. Therapy does get expensive, even just the co pay. Unfortunalety, being allergic to the cortisone my only other option is to have it "unfrozen" while under an anesthetic. If therapy doesn't work, that's what's next. I guess that's what I get for waiting so long to have it diagnosed. It has been bothering me since January.

 

Sherion

Share this post


Link to post
Share on other sites

Hello Sherion, Been there done that. Took 4 years of seeing the doctor then one day completely frozen. Yup frozen shoulder. Physio does not help only irritates. Cortosone shots don't help either. These are only band aids. Now I ended up with a specialist. Off to the hospital and he manipulated the arm, he said if I were awake I would hear cracking. Then immediately after I had physio to keep the arm moving. At home I did my excercises. The doctor gave me painkillers so to make sure I did the excercises. I was home for 2 weeks and I must say it only got better. After physio I went to a professional weight lifter to build my strength back up, amazing how you lose the strength. Unfortunately I have it in the other shoulder now and attempting to nip it early. Here is a note I also found that accupucture really helped with the pain too. I don't know if this has to do with sclerodema but would sound like it may. As it is scaring of the connective tissue and an increase in the production of collagen. Hope this helps I suggest insist on seeing a specialist asap.

 

Lynda

Share this post


Link to post
Share on other sites

Welcome to the Sclero Forums, Lynda. I am glad to see you have found us and started to post right away. I have a diabetic friend who has been suffering with frozen shoulder for some months. His doctor said quite a few people with diabetes suffer with it, more than the general population. I noticed in your other post that you are suffering from lung involvement with scleroderma. I am sorry to hear about this, but I know you will find much information and support in this group.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Lynda, Thanks for the post! I am seeing an orthopedist now. He said that if therapy does not work then I'll have to have it taken care of under anesthesia. I started therapy today and it hurt like the devil!! I just hope this works! I don't look forward to him having to take care of it the other way! Unfortunately, My insurance does not cover accupunture and I really cannnot afford the extra cost right now. I'll suffer with therapy and hope for the best.

Jefa, that's curious about the diabetes, when I had carpal tunnel surgery my doctor said that I had the same symptoms of a diabetic. I had the tests done for diabetes just to be sure and I do not have that, thank goodness.

By the way, Lynda, welcome to the board!!

 

Sherion

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now