kobi

Teenager

7 posts in this topic

Hi my son is just going through testing for scleroderma, and needs to be hospitalised for a week for tests can someone tell me what may be involved and what they use for treatment and outlook. regards worried mother.

Share this post


Link to post
Share on other sites

Hi Kobi,

 

Welcome to the Sclero Forums. I'm really sorry your son may have scleroderma. I have provided you with a link to get you started on understanding a bit more about this disease.

 

This site is a wonderful place for information and support.

 

Please let us know how the testing goes.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Kobi, It depends what your son's initial symptoms are. The doctors will do several blood tests, exrays or Cat scans. They will try to relieve the symtoms and find out what kind/type of scleroderma your son has. How old is your son? Relief will happen depending on what is happening at the moment.

Welcome to our family of Sclerodians. Hopefully, you will learn a ton of information that will be helpful in getting your son relief. Knowing the age of your child could be helpful. Others that have children in that age group will respond. Or other teens in our group could respond. I hope your son gets to come home soon. All our faith - hope - and healing comes your way. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Kobi ,

 

I also have a son with UCTD.....19 years old. They diagnosed him last Nov. How old is your son and why is he being hospitalized? This forum is great for information and encouragemnt.

 

Take care, Everyone.

Margaret

Share this post


Link to post
Share on other sites

Hello kobi,

Welcome! I am sorry to hear that your son is being tested for Scleroderma. It is hard to say what the weeklong stay entails for him. It really depends on what exactly they are looking for. What were some of his symptoms? What type of scleroderma did the doctor say they were looking for?


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

Hello, Kobi. Let me add my heartfelt welcome. I am sure you must be frustrated and wondering what is going on with your son. The fact that you have come here looking says worlds--you have come to the right place for information and support. Read whatever you can, but try not to worry too much. Do let us know how the week goes and what the doctors have learned about your son's condition.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Kobi,
I would like to join the others in welcoming you to the forum. I'm glad you went searching for help, because it truly can be a great comfort just to know there are those of us out here that understand.

With a week in the hospital it sounds like there will be lots of testing. The majority, if not all of tests are very noninvasive but will give the doctor an idea of what's going on and, if your son does have scleroderma, what is involved. You might want to visit our page on Common Medical tests for scleroderma. I don't know how old your son is, but we also have a section on Juvenile Sclerodermathat might also provide some information.

Please keep us informed on how your son is doing and how you are doing. You can get lots of hugs here!

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now