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Hi Everyone,

I recently got copies of my test results from the hospital where I see my rheumatologist and am a little concerned.

 

On my cT Chest - result states:

A 4mm subpleural nodule in the right lwer lobe is demonstrated. This is non specific in appearance.

A follow up study in 6-12 months time would be valuable to ensure stability in size and appearance.

 

Nothing was mentioned to me when I saw my rheumatologist a couple of months ago and I can't seem to find much info on the internet.

 

The only thing I found was Lung Cancer and I hope I don't have the beginnings of that!

 

Does anyone have an idea what this report may mean?

 

Many thanks

Celia

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Hi Celia,

Don't panic! It could be nothing or the start of something. Reading too much and investigating can only lead to making yourself crazy. It could be the start of interstitial lung disease or a misread on the scan. If you are really worried I suggest you call your dr and see if they can shed some light on the report for you. Let us know what you find out...

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hi Celia,

I think it's a good sign that your results recommend a "follow up study in 6 - 12 months." If they thought it was cancer, it seems like they'd be scheduling a biopsy or something now, not waiting to see what happens. So I'd say, you could probably feel reassured by the fact that they're waiting.

A nodule was found on my thyroid a few years ago. I was scared at first, then the Endocrinologist told me that something like 80% of people have a nodule on their thyroid! It's just something that happens, it doesn't necessarily mean anything's wrong. I just have to see the Endocrinologist every couple years, to monitor it.

I suggest asking your doctor about the results - hopefully he or she can help you understand better what is going on.

Best wishes,

Karen

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Hi Celia,

 

Wow, nothing like finding this out on your own. Please don't panic. It could be nothing. BUT, I would not wait the 6-12 months. I would call your doctor and have them start investigating now. Sometimes the stress of NOT knowing will cause more harm, then just getting down to the bottom of it now.

 

Please do keep us posted. Hang in there.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Celia, It could be anything from an old granulomatous infection. If you ever had phnemonia (sp) in the past it could be an old scar or tissue that isn't calcified. I was told I had a 3mm nodule. 6 months later I had another Cat scan. Now, I have that nodule plus a cluster of smaller nodules. So, the orginal one didn't calcify. I go in Oct. for a Cat scan with some sort of tracer or Iodine injection. This will tell the doctors more. It can be nothing. So, I am trying not to worry or let it bother me. Mine is in my left lower lobe. I was told they could all calcify and go away. I am playing the waiting game at the moment. Keep us informed.

Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Celia,

 

Two years ago in February I had pneumonia and was hospitalized. After I recovered from the pneumonia, I had cat scans that showed non-calcified nodules in both lungs. I had cat scans every 3 to 5 months over the past 2.5 years. The only thing I have now that I did not have is the nodules and some thickening or fibrosis in my upper lungs. It did not develop into cancer or anything that has stopped me from working or my usual activity. I do get short of breath with activity. Please e-mail me if you have any questions.

 

EAH


ANN

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Hi Celia,

 

As I understand it, due to newer technology, they are picking up on more and more abnormalities that turn out to be nothing serious at all. I had a handful of different serious-sounding (to me) abnormalities on lung cat scan (besides my usual fibrosis), which they tracked sequentially for two years.

 

The end result? Everything was still basically the same and nothing to worry about at the end of two years, including subpleural nodule, granulomas, and a "suspected thymic or bronchogenic cyst", pericardial fluid, fibrosis on both bases, etc.

 

I just wish they had told me in the first place that the odds were great that all of this would be nothing at all. I hate to waste even five minutes of worry over something that turns out to be okay, and two years is a long time to have even little teensy snippets of worry, if you ask me.

 

So, since my doctor didn't bother giving me any assurances at all, please take it from me, that it is very understandable to wonder about this, but try to relax and picture how superbly ridiculous you will feel two years from now when they finally issue a comparatively clean bill of health for your lungs.

 

I felt like a total idiot for letting it bother me for even a second, not to mention passing doubts for two years. The old line, "Don't trouble trouble til trouble troubles you" is generally great, although the sneaky thing is that an abnormal cat scan may obviously make us think that trouble has already troubled us, whereas its mainly due to the oversensitivity of the tests today, picking up things that in prior years would have been completely overlooked.

 

And if it really is trouble with a capital T, it will still take at least 6 months to 2 years to know that for sure. So then you would be glad you had saved up all your worry worts for Real Trouble, or perhaps even just a passing inconvenience, depending on their findings. I hope all of it turns out well. My hopes will be with you.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi, Celia. As the others have said, reading test results can be a bit daunting at times. I usually spend hours online searching, reading and weighing information against what I have already learned. Obviously you have done this, but don't panic. I would give the doctor a call, though, and ask him/her to explain the results to you to put your mind at ease.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Welcome to the Sclero Forums, eah. Glad to see you have jumped right in with helpful advice. I am sorry you are having problems with your lungs. You will find this is a great place to come for information about scleroderma and related illness and to find (and give) much needed support. Thanks.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hi Celia,

 

Looks like great advice here. I had nodules show up in thyroid (turned out to be nothing), parotid lesion show up (nothing came of that either.) All of these I panicked about and read on the internet that it could be cancer. All were investigated and found to be nothing. I would ask your doctor why they are waiting and he probably can relieve your tension about this now instead of wondering 6 months. Suisie54

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