• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Patty

He Finally "Got It"

10 posts in this topic

Hi everyone.

 

Over the past year I have dealt with this disease almost alone. My boyfriend just could not get that I was not feeling 100%. Some days he would yell at me saying that there was more to do in a day besides taking care of the baby. He could not understand that I now have to do what I can as far as how important they are and the baby comes first, then the house work etc etc.

 

Well last night when he got home from work I got up and went down stairs to talk to him. ( he works second shift). I started to say how I could not move my toes because my feet were so swollen. He looked at my feet and was in shock how swollen they were. He really thought that they would split open! To make a long or not so long story short, he told me to call my daughter and have her come stay here for a while to help me out.

 

Until yesterday my daughter was not allowed at my house because I am adopting her baby and Tom is mad that I have to give up my health to care for her baby. I myself think having the baby is helping me more then hurting, because some days I would stay in bed if I didn't have to get up with her.She makes me laugh so much each and every day. I just love her so much, I really thimk shes good for my health. (Dont get me wrong, it is hard running after a busy2 year old.)

 

So anyway, my daughter is here for a few days or how ever long and I get to kick back and stay off my feet like the Dr told me to do!

 

So anyway, thats my good news for the day!

 

Hugs,

Patty


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

Share this post


Link to post
Share on other sites

Oh Patty, I am so happy for you!!

 

This disease is hard enough to deal with let alone not having any support to do so. I'm really happy for you that you're going to get some help and even more happy that your boyfriend is starting to understand!

Small miracles!!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

WOW Patty,

I'm sorry it nearly took bursting our of your skin for your boyfriend to come around, but...at least he finally sees it! Hooray!!!!!

 

Please promise that you will take advantage of your daughter being there and let her take on the responsibilities of being a mother. Maybe she'll start seeing the joys of her daughter as you do. Also, let your daughter take care of you for a while as well.

 

Get some well deserved rest.

 

Big Hugs,

Janey


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hello Patty~

That is great news, thank you for sharing it. I am so glad that you are able to take a little time off of your feet.

 

:D


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

Sometimes it takes those closest to us the longest to see what's going on. I guess that is just first class denial. I agree with Janey in hoping this experience may open some opportunities for your daughter to embrace motherhood. Love to you all through this.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Thanks everyone for the replies. I am really taking a liking to this pampered stuff lol. I may keep my daughter here untill she's too preggo to help me out lol.

 

My feet swelled up again last night and I had pain so bad I had to break down and take some meds so today It's feet up all day and I am not moving unless I have to. I think I am going to get an old pillow, go outside on the lawn swing and prop up my feet and read my Voices book. Maybe sip some iced green tea and let the world pass by for one day. I really am enjoying having Megan here to help out. Not only is she doing most everything for Gia but she's doing most everything for me. Just for today I am not going to worry about anything and I am going to enjoy the much needed break!

 

Hugs to all,

Patty


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

Share this post


Link to post
Share on other sites

Patty,

Enjoy the day! I am glad you have some help. I agree that the baby is probably the best source of comfort you can have right now, although it's a lot of work. It's the same thing with my animals, although I KNOW they are in no way nearly as needy as a child, they make me smile and give so much affection. What therapy they have been for me. I cannot even tell you in words.

 

I hope you feel better soon. Rest and relaxation while you can!

Take Care,

 

Jennifer

Share this post


Link to post
Share on other sites

Patty,

 

I'm sooooo Happppppy for you! It's about time! Wish I was there to share a tea with you, but for now I'll drink my tea here and think of you! As others have already stated, take advantage of your daughter being there to catch up on some much needed "Patty" time.

 

I'm sorry I haven't been around much, we've had a family emergency for the past week or so. Had a family member gone missing and it's been mass chaos! Well, he's back home now, he got lost in Detroit of all places. But, I'm off to work now and all day tomorrow. I'll try to call you on Sunday to catch up!

 

Stay comfy and Happy!


Happy people don't have the best of everything, they just make the best of everything they have!

 

Warm and Happy to you! Vee

Share this post


Link to post
Share on other sites

Hi Patty,

 

Hooray that your sweetie saw some light! I'm also really glad that you've had this time for yourself. Your day sounds delightful. I hope you are able to have it a bit more regularly. Hopefully that would help you to not get in such bad shape.

 

Little ones bring so much joy and we love them so much. However, they require so much energy and our batteries are not like the energizer bunnies! (In the States, we have a brand of batteries for toys, radios, etc. that they advertise in a bunny that just keeps on going and going and going......His battery NEVER runs out. Wouldn't that be nice?)

 

xoxo emmie

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now