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Extra symptoms of morphea


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Hello, I’m Aimee, I am 20 years old and have had morphea since I was 6.
 

I have a patch extending from under my armpit  to below my breast, as well as another separate patch in the middle of my left abdomen. While it doesn’t bother me in any way, I have had my muscle eaten away under my morphea and this affects me a lot. Because it is across the left side of my trunk, any form of muscle building exercises will instantly give me problems since my right side tends to bulk more in order to compensate for my left weakness. If I work out my arms my shoulders get tense, my legs then my hips are uneven, my core then my back is in pain, doing cardio gives me a sharp pain in my lung making it hard to breath. So I’ve dropped exercise altogether. Is there anything that can be done for this?

 

Also along with morphea I believe I have developed anemia, brittle nails, gastroparesis, and sebopsoriasis as a result from the morphea. I began taking iron, hydroxychloroquine, zinc, and biotin pills along with a calcipotriene topical on my morphea and ketoconazole on my scalp and face. I used to weigh 120lbs, my height being 5”7, but I’m spontaneously dropped to 111 and find myself full so quick after 3 bites into a meal. My eyes brows and the sides of my nose, not to mention my ears, all have scales and red irritations surrounding them. I am constantly cold and always have to take a second to not topple over when I stand up.Regardless of how much I build up my nail strength, they will still chip by the end of the day. 
 

I am a happy individual who is not ashamed or embarrassed of my condition at all however, for a body in the prime age of 20, I feel more old, staggered, and falling apart than I should. Is there anyone who has the same “side symptoms” from their morphea? Is there anyone that can offer some advice for better handling any of them? 

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Hi Aimee.

Whilst I do not know too much about Morphea, I would urge you to continue to exercise as much as possible.  If one side differs, there are many exercises that will only impact of one side giving you the balance you want 

 

Please also consider that symptoms are often caused by the side effects of any medication rather than the underlying disease itself.

 

You might also like to familiarise yourself with the sections of this website relating to morphea.

 

Regards, Dimarzio.

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Hi Aimee,

 

Welcome to these forums.

 

I'm sorry to hear that you are suffering unpleasant symptoms due to morphea and I've included a link to our medical page on the subject, to give you more information.

 

Since you've been dealing with this condition for a number of years, I assume that you have consulted a listed scleroderma/morphea expert. He would be the best person to give you specialist advice and help, as scleroderma morphea is a complex disease and requires knowledge and expertise in order to be dealt with correctly.

 

Kind regards,

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