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Has any anyone experienced extreme crepey skin with systemic scleroderma? I know it effects your tissues and assuming it is effecting my collagen but I feel this is suddenly happening all over my arms and legs and looks awful.

Is there a way to reverse or get rid of it? It is also making me lose muscle mass.

Any treatment that could help this? It is pretty scary at the rate this is happening.



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Hi Mary,


Sorry to hear that you're suffering with crepey skin; I've not heard of it being a particular feature of scleroderma, although skin problems are very common.


I've included a link to our medical page on Skin Involvement, which I hope you'll find helpful and informative.


Kind regards,

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Thank you! I don't know if you are the founder of this site but I think it is very admirable of you to provide a forum for us to feel supported. it means a lot to me to at least release what I am feeling even if no-one responds. I was recently diagnosed and sometimes feel hopeless and alone and don't know who to turn to because no-one really understands how afraid I really feel. I am wondering if I need to be put on anxiety meds but don't want to mix drugs but feel really depressed lately since I have feeling some weird symptoms with this diagnosis.


Thank you again!!  :>

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