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Gizelle

I'm Having Surgery

12 posts in this topic

:( I hate to have this surgery, but I have to. It's bladder repair. The doctor said that this is very routine . It's just that I think of the Scleroderma and hope it doesn't cause any complations. My urologist does't see any problems. I'm still nervous. Has anyone else had this surgery? I do know some people, that had it and they were fine, but they didn't have any diseases. Oh well I just to wait. I'll let you all know how it goes. Gizelle

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Hello Gizelle,

We are all in your corner routing you on! I havn't had bladder surgery, so hang in there and keep us updated.

Take care &


*WestCoast*

 

********

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Gizelle,

I'm sorry you are having to go through this surgery. Since you're having it done, it's obvious that you're having problems that are hard to live with. Be sure to talk to the doctor about your medications. He might want you to stop or cut back on some before and after the surgery.

 

We'll be thinking of you and looking forward to hearing that everything went well.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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I have known several people who have had the surgery, my mom among them. They all said it was a big relief for them in quality of life. I guess how the scleroderma will impact the situation is unpredictable, as each case is so different. Do listen to Janey's advice (always good in my book) and talk to the doctor about your meds.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hi Gizelle,

Having surgery is no fun especially where sclero can affect your healing process. Please know we will be thinking of you!!!

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hi Gizelle,

 

Sorry to hear about any surgery that you have to have and you are in my thoughts.

 

TJ

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Hi Gizelle,

 

I've been through 3 back surgeries, and although your surgery is different, there is one thing to keep in mind when you have sclero; DON'T try to get back to your normal routine until you're healed well. After the last one in 2003, I had to return to work 2 weeks after coming home from the hospital due to insurance/financial problems, and it definitely aggravated everything. With the other 2 surgeries I did rest more and didn't have the flares. Aside from that, I wish you well, and please don't worry since that won't do you any good either.

 

Best wishes to you,

 

Elehos

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Hi,

 

Just wondering why you are having the surgery. What symptoms are/were you having? I hope this isn't too personal. I just want to understand the different aspects of everyone's disease.

 

Thanks for sharing,

Denelle

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I have been having problems leaking, especially when I cough or strain.

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Hi Gizelle,

 

I'm sorry you have to have a bladder repair. Although I have never had one myself, I used to work with an OB-GYN and we had many many patients that finally chose to have the surgery after putting it off for so long. The end result every single time straight from them was "Oh I feel great, why did I wait to long to have this done".

 

I'm confident you will do just fine.

 

Keep us posted.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Gizelle,

 

Good luck with your surgery! I am sure it will go well, and will be sending good thoughts your way. It sounds like something you'll be very glad to have done, once it is over with.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Gizelle,

I've had several bladder surgeries, and just want to tell you to take it easy, don't overdo it afterward, and it will most likely change your life once you're recovered. One suggestion is to ask for a "donut" cushion to use during recovery. It can really help!

I hope it all goes well for you.

Beth

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