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Traumatic 24

13 posts in this topic

I'm getting quite used to castastrophies -- let's face it with this condition you get a few, so for me to report that for once it doesn't involve my illness is a blessing in disguise.

My poor mum who suffers with dementia, was taken into hospital with a mouth infection which led to her not eating or drinking. The problem arose through a complete lack of care by the careworkers who support my parents at home, something I am in somewhat of a crusade about at the moment. Anyhow she was taken into hospital, given IV antibiotics and then when I went to see her yesterday with my dad I noticed to my horror her left leg was swollen like a balloon and completely blue ---- A thrombosis had set in. I alerted the medical staff who were unaware of her condition ( Yeah unaware! ) They imediately began fussing around and when they turned her over she rolled back her eyes, her mouth opened and was slipping away. My dad was shaking really badly and I was trying to hold it together---- my dad's not well either With Angina and COPD!

It was a very upsetting half hour and the time was nearing for me to collect my daughter from school which I unfortunately had to do. I left my dad and drove home, quite how I did that I do not know! I rang the hospital on my return to find that she was poorly but stable and my dad wanted to come home. I went back to the hospital and she did seem brighter! We all travelled home and I made some dinner for us all. My dad went to the bathroom and I heard a 'Thump' he'd collapsed on the floor with an angina attack. We got the paramedics and off to the hopital he went again.

My parents are in the same ward in different bays. I'm going into hospital myself on monday for a tube replacement so all in all a very traumatic and upsetting 24 hours. I'm trying to be brave and keep the whole thing together. My daughter is doing final exams and the last thing she needs is even more stress!

I'll rest my blogs for now but I'll be back soon!

 

Love and best wishes

Barbs xxx

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Oh Barbs!

 

If it's not one thing it's another! Hang in there, as I'm sure you are, but my goodness, how difficult can it get?! Not one parent but both. Oh dearie me!

 

It would be hard enough if you were well, but doubly hard with all your own problems! (Many exclamation marks!)

 

All the very best too for your tube replacement. I'll be thinking of you. Please keep us informed as and when you can.

 

Warm hugs,

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Oh Barbs,

You have it rough right now, Please know I am thinking about you and sending you warm supporting hugs,

 

Big hugs,

Irene

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Hang in there Barbs. When it rains, it pours. That is an understatement with you and your family. I hope your parents get on the mend and stay out of crisis mode while you are getting your procedure done. Susie54

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If it isn't one thing after another, sweetie. How much can one family endure?

 

I do hope that your mother and father are both feeling better soon and that your tube replacement goes well, too. Good luck to your daughter on her exams, while we are at it and continued strength to your husband.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Barbs,

This is soap opera material! You are blessed with a sense of humor and I am glad because your plate is overflowing!!! I send good thoughts your way and I hope that the sun will start shining in your life very soon.

Nan

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Oh Barbs,

 

I will be thinking of you and your parents and sending get well wishes their way.

 

Your "Traumatic 24" puts my "Murphey's Law Week" to shame!

 

Do take care of yourself. If you have to go fall apart in private, go do it. Don't try to be everyone's rock.

 

May your proceedure go off without a hitch and everything get back to normal for you all!

 

Love,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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And I thought I was having a bad day. I am so sorry for all of the trauma in your life. I sure hope your mom and dad are okay, it's nice that they can be in the same hopital at least. Good luck to you with your tube replacement. Also good luck to your daughter in her exams.

 

Jackie S.

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Hey Barbs,

 

My goodness. I am so sorry to hear about your mum and dad. This must just have you a wreck! I hope your tube replacement goes well. Please try to take one day at a time, not look to far into the future at this point and take care of yourself. Sending good vibes your way for your parents, you and your daughter.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Barbs,

 

I'm sending all my very best to all of your family. Healing hugs for your mum and dad, special strong and healing hugs for you, smart hugs for your daughter and a scorecard for your hubby to keep track of it all (and a hug for him too so he isn't left out!)

 

Do take care and try to be rested before your procedure. You are going to be quite the glamour gal once it's done :)

 

xoxo emmie

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Hi Barbs,

 

I have to confess, I started reading this thinking it was going to be another one of your ever-humorous postings. What a comeuppance I had!

 

I'm very sorry that your mum and dad are both so ill and hospitalized. I'm curious whether you got your lively sense of humor from either or both of them?

 

Shall we start placing bets now on which of you gets out of the hospital first? I am hoping it is you, as you have plenty enough to deal with already! And of course we will all be sending good thoughts your way, in hopes that things improve for your entire family.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Thank you so much for all your lovely words and kind thoughts -- I find my solice on this board amongst those who truly care!

My mum and dad are both stable, I guess in medical terms that means " We can't tell you even if we wanted to" My mum is by far the worst of the two -- my dad is more or less is normal self and that kind of answers Shelley's question! My dad is the serial joker in the family even yesterday. A man came to visit to give him some moral support. He said that he hoped he wouldn't be in hospital next week when he would be on his rounds again, my dad just quipped " I'd rather it be you pal than the undertaker" And when asked if he was in there to be close to my mum he just said " Yeah but I asked for a double bed -- The NHS is slipping these day's" --- He's 78! Also at my mums bedside yesterday he was telling everyone that he was mum's toyboy -- Mum's 81.

Everyone knows my dad, he's been in and out of hospital too over recent years.

The diagnosis for him this time is probably a stomach ulcer! Something else for him to add to the list. He's having an endoscopy today.

Mum is suffering Thrombosis,dehydration, a bacterial infection of the mouth, and long term dementia! She's lost weight because of the mouth infection and the dehydration set in as a result. She wasn't moving around much either so I guess this is what's caused the Thrombosis, but I knew long before it happened that she had blood clot but I won't go into that just yet!

As for me well. I feel much better knowing that mum came through and my dad is back to his normal self. Although it sounds like the worst situation you could think of --- I think it's working out fine. My dad isn't on his own to dwell and he's close to mum. I can visit them both at once and I'm not running all over the place!

I have a slight cold which I hope becomes nothing more, mainly because of the procedure on monday -- I just want to get it over with!

Thank you again for all your kind thoughts ---- I'll keep you all updated, as and when!

 

Love to you all

Barbs xxx

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Barbara ----- You and all of your family are in my thoughts

Birdmans Wife


Hugs for All,

 

Julie (Bird Lady)

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