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Beanpole

Scoliosis

6 posts in this topic

Hello everybody!

 

Hope all is fairly well today. We have a lot to be thankful for. We're still here...

 

Well on to my question for all of you who can answer: I was having severe back pain which started a year ago. It got worse this year which landed me in bed for 10 days immobilzed. I was in so much pain that the tears wouldn't fall. I can't even begin to explain the severe pain I was in. My mom finally begged me to call for an appointment to see a chiropractor in my area. I wasn't fit enough to travel the 2 1/2 hour trip to my specialist. I was able to get an appointment for the next day. She took x-rays and diagnosed Scoliosis and along with that she said that my pelvis was pushed back somehow. The x-ray also showed that my vertebral discs are degenerating. I spoke to my rheumatologist's about it and they have chosen not to refer me to an ortho...that's one of the reasons why I've opted to find new doctors. But in the meantime, do anyone have any suggestions of how to decrease the pain that I am in and do anyone of you have been diagnosed with Scoliosis since having Sclero? I'm willing to try whatever that will work for me except surgery. I can't afford being cut on any longer. Looking forward to hearing from you soon.

 

Smoochies...

 

Michelle


Michelle C. Hunter

ISN Book P.R. Coordinator for the U.S.

International Scleroderma Network

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HI Michele,

 

I am sorry you are in so much pain.

I have scoliosis (my spine is curved and rotated) and I have had it since I was about 15 (I am now 31yrs), and still don't yet have a proper diagnosis of Scleroderma.

 

I have degeneration in my T11,T12 and L1 areas and often have a lot of lower back and upper back pain.

I had and x-ray in May of my spine, which is the first one in 15years ,which showed the degeneration, and my rheumatologist sent me off to Physiotheraphy which has helped greatly.

She has started me on hydrotheraphy in the theraputic pool and I can't tell you what a huge difference it has made.

She doesn't manipulate my back at all, but guides me in simple exercises in the water.

 

They bascially want me to strengthen my core abdominal area to support my back so over the next few years it doesn't get worse as fast as it has.

 

If you can get into a heated pool (I can't stand it too hot), but the warmth and gentle exercise seems to help me. My physio does not push me at all, and sometimes I wonder if I am doing enough, but as she says.....easy does it.

 

The only other things that seem to help me are a wheatpack or hot water bottle and some meds.

 

Sorry I can't offer anymore help than that ,but I can sympathise with you.

I hope you can find a rheumatologist who can send you to an ortho, or a physio that specialises in arthritis, as mine does.

 

Big hugs,

Irene

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Hi Michelle, I'm sorry you are having such pain from your back. That really is miserable. My daugher who is 19 was diagnosed with scoliosis at 12. They just followed her and didn't recommend any treatment. They also said she shouldn't be having any pain, but she does. She has found a great massage therapist and she goes weekly to her. She gives her strengthening exercises to do as well. My daughter says that it really helps her pain.

Hope you find something that helps,

Hugs, Piper

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About a year ago, I was told I had scoliosis, and the doctor acted like I should have already known that. I was surprised because I don't remember anyone mentioning it before.

 

Anyway, I have quite a bit of problems with my back. I have to have spinal manipulations and a massage weekly and even with that I'm in pain everday.

 

Sorry to hear about this for you, I can feel for you.

 

Much love Sweet


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Thanks Piper and Irene!

 

A good friend of mine suggested that I see a massage therapist and I am in the process of finding a good one, preferably one who is familiar with Scleroderma patients. I have thought about the warm water excerises but was somewhat skeptical about it. I'll have to look closely into it, now that the pain has increased. Thanks again for the suggestions and support.

 

Peace,

 

 

Michelle


Michelle C. Hunter

ISN Book P.R. Coordinator for the U.S.

International Scleroderma Network

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Thanks for your encouragement Sweet. And I feel for you as well. It's nothing like having back problems. Once it starts, you will have this problem for life. I do hope things change for us for the better.

 

Peace,

 

Michelle


Michelle C. Hunter

ISN Book P.R. Coordinator for the U.S.

International Scleroderma Network

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