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Two weeks before my first symptoms of Scleroderma, I tried Lunesta as a sleep aid for insomnia. I seemed to have a reaction to Lunesta. I remember waking up and all my muscles were rigid and my wrists were bent and my chin was pushed hard into my chest. It was not normal and quite shocking. I stopped right away but right after that my first symptoms appeared and progressed to eventual Kidney failure and Systemic Scleroderma.

 

I feel that Lunesta was the trigger for my disease. This is obviously a personal observation and can't be proved one way or the other. I have read that there are known triggers for Scleroderma. I was wondering if anyone else tried Lunesta or Ambien prior to first symptoms of if you think something else was a trigger?

 

Joe

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Dear Joe,

 

I have not heard of Lunesta causing scleroderma but isn't it well documented about silica and other substances? so, who knows? Maybe for you this was the trigger. For me, and I know it without doubt it was being septic after surgery in 1988. I had a FANA in 12 of 1988 which was negative (during sepsis) - in February 1989 had my first positive FANA. So, I firmly believe in scleroderma being 'triggered'. Boy has it been a ride since.

 

Wishing you well.

JLF

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Joe I have no idea if anything triggered me haivng scleroderma. I was real young when I didn't feel good and was tired all the time as I am now. I had my children at a young age. And when I was 21 I had found out I had raynauds then diagnosis with sclero in 1996. So who knows.


Sam

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I've always had a sensitivity to certain drugs and most antibiotics [hives and rashes]. The year before, I had a Lyme infection that I let disseminate before seeking treatment, as well as one of the eczema viruses. Then there were a couple colds I had picked up at the office immediately before the first symptoms appeared when I took many cold meds and ibuprofen.

 

I spent a lot of time trying to figure out what I did to cause my illness. I am content now with the idea that there was a combination of factors that became the spark or trigger... mostly it's just chance and the way I was programmed.

 

Later I read that this is a typical stage for most traumatic events - whether chronic illness, cancer, accident, attack, etc.

 

It may be different for the type of sclero... I have diffuse

 

Take care,

RTS

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Joe,

 

My husband and I both swear that it was too much Kenelog (steroid injections) that I received for my neck and back pain. I had injections every week for a month and a half. After the total body swelling went down a year later (2006) I still had a patch of skin on my left forearm that refused to go back to normal. It spread from there. I was treated for water retention for 6-8 months and finally sent to a rheumatologist and was diagnosed Jan. 4, 2007 with a very fast aggresive form of diffuse sclero. I'm sure all of my doctors would argue with this, but I have a feeling that it was too much kenalog too fast!

 

Keeping you in my thoughts. -TJ

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Hi Joe,

 

With lupus and sclero, I've found that I react severely to meds now, although you could have given me d-con years ago with no more than a burp afterwards. It could be that the sclero was already there, and your reaction to Lunesta was due to that. There was a post quite a while back about "triggers," and I don't remember off-hand if it was Americanmike that started it, but a lot of us seemed to have either numerous infections and surgeries for years before the sclero turned up. By any chance is that part of your history too? Not to say that's the cause, but just curious.

 

Best wishes to you,

 

Elehos

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Joe, I'm not sure if any medications brought on sclero for me. All I know is that I was a really sickly child, but for about 13 years before my diagnosis my life was a stress filled roller coaster. Symptoms seemed to have started about three years before I finally got the sclero diagnosis. The doctors really don't give you any reason as to why, it just happens. I truly think stress is a big factor. Just my opinion.

 

Sherion

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Triggers. What a great question. I was always as healthy as a horse and a very active technical climber. I always took really good care of my body being conscience of my nutrition and exercise. One morning I woke up with swallon hands and six months later I was diagnosed with Diffuse Sclero. I think for me it was just a case of very bad luck.


Rosa

Diffuse Sclero

dx Jan 2006

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Hi Joe,

 

I remember as a little girl always being sick with one thing or another. I had strep throat umpteen times until my tonsils were removed when I was 6/ When I was a little older I had constant urinary tract infections (UTIs) and then kidney infections with mono twice in high school. Not sure what my trigger was, but I have been on Ambien for about 4 years now and I don't think it has progressed my disease.

 

Hugs,

 

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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I always had cold hands and feet, even as a child, got sick with bronchitis every winter. Age 16, depression and epilepsy, started meds. Age 17, developed gallstones and had gallbladder removed, acid reflux and trouble swallowing started 6 years later. Then asthma, arthritis. So I have no idea. I think my Sclero is genetic and has been showing itself from childhood, but it was just never recognized until this year. I don't know if it's surgery, or meds, or stress that made it really get bad - I couldn't say for sure when it started.

 

Karen

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Thanks for the info everyone...I am sure there are triggers but I am also sure it is different for everyone. I think Genetics plays a role also. I found a distant cousin of mine also has it. I read that there is a high prevalence of SSc in certain Indian tribes too.

 

Joe

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Triggers huh,I think mine was chemicals that I handled when I was working in the enviornmental services at a local casino.Some of it was very strong and burned our eyes throat,etc.We complained enough that they started using some other kinds but I often see those same chemicals in other places as in Superstores.I was under a lot of stress as well.Whatever I will always blame it on that.Mary-La.

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