epasen

Cold Hands

36 posts in this topic

Hi cold hands are the result of poor circulation, My hands were what first drew the doctors attention to scleroderma. I some time later fell of the trampoline and landed on the concrete this caused a big reaction to my finger l have photos that l had to show specailist but l dont know how to get them on this site keep warm

kobi.

Share this post


Link to post
Share on other sites

Hi Kobi~

If you are intereseted in posting your hand photo on the forum you should first have the photo saved on your computer.

1. click on your name on the left side of your post.

2. when you are at your "profile" go to the bottom of the page and click on "Edit my Profile".

3. then look to the left of the page and scrole down, click on "Profile Photo"

4. then click on the "browse" buttom next to the words saying Upload a new image.

5. when you Browse for a photo, it will take you to your computer files where you can choose the one of your hand for instance, and then click "Update Photo and it will be added to your profile page.

 

Hope this helps. One thing to remember is that the photo must be saved as a JPG and the size must be reduced to 100KB.(usually if you resize the photo to 5 x 7 inches it will be the right size to upload)

 

Hope that this helps and is not confusing. Let me know if you have any further questions.


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

Raynauds can get "out of control" if you dont take care of every little issue that arises. I just came back from the doctor and he was saying that I need to keep them warm and if not I need to go on medication. This is because there is little circulation in those extremities. This makes it hard for the skin to stay healthy on the fingers.

 

I do think warmth is the key to our healthy fingers, but sometimes it is out of our control and that is when meds become useful.

 

Here is a link to look at Raynauds Prevention:

http://www.sclero.org/scleroderma/symptoms/ray...prevention.html


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

Hi,

 

I have Raynaud's severe and my doctor put me on Adalat, it is used for blood pressure but it did the job, hands and feet look good. In the winter I wear ski mits they have the best insulation. Also, when they are cold I do excercises to get the blood flowing. Pumping my hands and wiggling the fingers and toes helps too. I would be careful using hot water or heating pads you may burn the skin.

 

Good luck.

 

Lynda

Share this post


Link to post
Share on other sites

I think this might be getting worse, cause right now I'm dealing with a lots of stress, and it feels like my fingers and toes are getting more colder more often. I should probably see a doctor very soon, but then I would have to meet new doctor and that scares me: i want somebody who knows me and knows what to do whit me.

 

Well I have to hurry up for a family event and we're gonna be late soon.

 

Thank you so much for existing!

Share this post


Link to post
Share on other sites

Sam-

 

I find that putting my hands and feet in warm water helps me the best too. Mine Raynauds flare up at the slightest change in weather. It's sooo frustrating but I've learned to carry gloves with me everywhere I go. Those little packs that warm up work well too when your out and about. B)


Take care and stay warm,

 

Michelle

Share this post


Link to post
Share on other sites

I have a parafin wax machine. I just put my hands in the wax for about 60 seconds and lie down for about 5 minutes and the warmth just bakes deep into my hands. The releif is so awesome I cannot express how much it helps me. It keeps your skin softer (as much as it can be) and it did help with the itching somewhat. If the cold gives you constant pain, this will give you temporary bliss. My rheumatologist advised me about it initially. Hope this helps...

 

Joe

Share this post


Link to post
Share on other sites

Hi! I have Raynauds really bad too. I get ulcers on my finger tips. My feet get white, blue etc. too but no ulcers there. I use toe warmers and wool socks at work (I work in the operating room at a hospital). I also wear sweaters a lot...even in the summer I carry one with me (I live in Tennessee). At work, I use a hand muff (it straps around the waist like football players wear) and I put the air activated hand warmer inside it(lasts 12 hours!!). I also take viagra which is expensive (insurance won't pay for it) but it helps SO MUCH. I have tried the nitro paste and MANY other medications but the viagra is the only thing that helps as far as medicines go. I also carry the hand warmers in my purse just in case I need one while I'm away from home. I use microwaveable rice/bean mitts and electric blankets in the winter. The warm water trick is the most effective but I can't always get to a sink and I don't want to stand there all day long with my hands in the water! I get white hands with anything less than about 75F and a cool breeze!! I think I should just move to the beach where it is always warm!! Hope this helps.

 

Annie

Share this post


Link to post
Share on other sites

Hi,

My specialist told me the Raynauds often gets somewhat less troublesome over time as the sclero develops and that seems to be the case for me. So at least you may not have to put up with it being so bad for always. I find keeping my body warm, not just my hands, is really important in controlling it.

I also have problems with my nose which really aches when it goes numb. I jokingly say I am going to wear a nose cover! Does anyone else have this problem?

Regards, Wendy

Share this post


Link to post
Share on other sites

I haven't heard about these battery operated gloves in my country. :/ Sounds like they are really good. Usually I wear two pairs of gloves (my grandmother knits them for me) in the winter. A month ago my doctor prescribed me a new medicine - Plendil and it seems very good - I can feel how my hands and legs are getting warmer. :D However because of that medicine my head hurts almost everyday.

If they are very cold and hurt I put my hands in really, really hot water.

Share this post


Link to post
Share on other sites

Really hot water is very bad for your hands and fingers. You are suppose to use slightly warmer than luke warm and slowly warm your hands. I know the hot feels better but, it is damaging. This is what I have always been told. Sure hope your hands get a break from the Reynaulds. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Yes, Wendy. My nose and ears get very cold. In fact I have a growth or something on the tip of my nose which I wonder if it is caused by Raynaud's. My general practitioner is referring me to a dermatologist to check it out.

 

Hi Afii. Plendil is a calcium channel blocker. Sorry to hear it is giving you headaches. Have you shared that with your doctor? Nice to hear from you again.

 

You are right, Sheryl -- it is best to warm them gradually in warm water.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hey there Wendy,

Thats funny that you mentioned that because all winter long I would joke about inventing an ear-muff/nose warmer. :blink: I can just imagine how silly that would look, but who cares when your nose is so cold that it hurts right?!

 

I think that I have read that the nose, toes and fingers can all be effected by Raynauds.


*WestCoast*

 

********

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now