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epasen

Cold Hands

36 posts in this topic

I haven't heard about these battery operated gloves in my country. :/ Sounds like they are really good. Usually I wear two pairs of gloves (my grandmother knits them for me) in the winter. A month ago my doctor prescribed me a new medicine - Plendil and it seems very good - I can feel how my hands and legs are getting warmer. :D However because of that medicine my head hurts almost everyday.

If they are very cold and hurt I put my hands in really, really hot water.

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Really hot water is very bad for your hands and fingers. You are suppose to use slightly warmer than luke warm and slowly warm your hands. I know the hot feels better but, it is damaging. This is what I have always been told. Sure hope your hands get a break from the Reynaulds. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Yes, Wendy. My nose and ears get very cold. In fact I have a growth or something on the tip of my nose which I wonder if it is caused by Raynaud's. My general practitioner is referring me to a dermatologist to check it out.

 

Hi Afii. Plendil is a calcium channel blocker. Sorry to hear it is giving you headaches. Have you shared that with your doctor? Nice to hear from you again.

 

You are right, Sheryl -- it is best to warm them gradually in warm water.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hey there Wendy,

Thats funny that you mentioned that because all winter long I would joke about inventing an ear-muff/nose warmer. :blink: I can just imagine how silly that would look, but who cares when your nose is so cold that it hurts right?!

 

I think that I have read that the nose, toes and fingers can all be effected by Raynauds.


*WestCoast*

 

********

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Just in case you are unaware...these arterial spasms that trigger our Raynaud's symptoms are made MUCH worse by vasoconstrictors, so avoiding caffeine and nicotine and keeping warm rate among the first stpes in diminishing your symptoms.

 

Good luck and keep warm!

Laurie

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I didn't have time to read all the responses so I apologize if some of my info is a repeat, but I have Raynauds as well. I get a handicap plackard in the winter months, I use many different heating tools like microwavable things, heat packets for toes, feet, & hands that you buy at a sporting goods store, hunters use them. You peel the tape off & that activates the heat. I put them on the balls of my feet & toes when I go out in the winter & in my gloves. I have problems in the summer as well, still use the heating blanket etc.

 

I believe that this is how it goes in regards to raynauds attacks & damage done, & I may be wrong, but a raynaud's attack means a lack of oxygen in that area, your body is made of cells, cells need oxygen to function & survive. When the cells in the affected area are lacking in oxygen, damage, even slight damage, can occur. The more attacks there are & the longer in duration they are, the more times those cells go with out oxygen & the longer they go without oxygen & the more damage is done. The more damage is done, the more suseptable they are to raynauds attacks that are longer in duration & it's kind of a viscius cycle.

 

Again, I may be wrong on this but from what I've learned in Biology & rad about Raynaud's.... I think that's sort of how it goes. So it's important to protect your body as much as possible & keep attacks & duration of attacks to a minimum.

 

Also, in regards to warming them, when extremities are warmed up too quickly damage gets done & I am pretty sure that that is how chilblains occur. It's important to warm up slowly in warm water. I admit that I have been guilty of breaking this rule though.

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Yeah, my nose's getting very cold sometimes.. But it really doesn't bother me that much, so I don't do anything for it.

 

I've taken new medication for Raynauds more than a week now, I think these bad side effects are getting not-so-noticable, which is good thing. But I don't know if I should continue taking these, cause they are still making me tired and my mouth dry etc. Well I'll let the Finnish cold wind to show me if I need them or not.

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During cold weather I wear a turtle (I think it's called) around my neck. When I go outside, I can pull it over my mouth and nose, still keeping my neck warm. I love it!

 

Also, have you checked the "Warm Me Up" products? Warm Me Up is a donor to ISN for scleroderma research and support. I understand the products are great!

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Something to think about........

 

When I'm not sleeping in my recliner, I tend to curl my hands up under me at night and will wake up with both hands asleep. Then I worry about my Raynaud's. So I started sleeping with my left wrist brace on and it helps a lot. I need to get a righty now.

 

B


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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I've had Raynauds in my fingers forever it seems. About a month ago my toes became frozen, which is funny because it's 110+ outside. Even in the sun they're still toe-popcicles. So I started applying the nitro bid cream to my toes as well as my fingers and they're warming up thankfully. Sometimes I don't have the cream with me so I have my husband sit on my feet. His bum warms them right up.

 

peanut


You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

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