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SCLERO.ORG is Retiring on April 24th 2021.

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  • Joelf featured this topic



Oh, my  :sad:.....I come here every morning for updates, etc.  It hasn't been as busy as it was years ago, but the information you provide

is informative.  Shelley and this crew got me through the roughest part of Gareth's initial diagnosis.....almost 15 years ago!


Thank you, so very much  :thank-you:


Take care, everyone.


Mom to Gareth, 32 years old, DS/ASD

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Hi Margaret,


Thanks so much for your post.


I did send you an email telling you about the retirement of the ISN a couple of days ago. I wanted to say to you how much we appreciated your support and helpful advice to our members over the years ( even before I got involved!)


I do hope that you Gareth and the family continue to keep well and do let me say what a pleasure it's been to get to know you all.


My very best wishes and love to you all.



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  • Joelf unpinned and pinned this topic

Sorry to hear that Sclero org is retiring Jo. Is there another forum that we can all gravitate too as I will certainly miss some of the activity here even though it seems to have dropped off a bit lately.


Would you mind letting us know what the thinking is behind this decision? Is it simply the lack of support and activity?

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Hi Dimarzio,


Thanks for your post.


There is a Forum linked to the UK Scleroderma and Raynaud's UK (SRUK), which you might find helpful.


You've always been such a supportive member right from when you first posted and joined us and I do want to thank you so much for the helpful and kind support you've provided for our members.

Shelley is retiring, but not (I would hasten to add) through ill health. We all feel that the ISN has run its course and she is going on to pastures new.


Kind regards,



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