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CFMBabs

Pure Agony

16 posts in this topic

I guess over the years I've become toughened to almost anything a hospital can throw at you. Yesterday, was pure agony!!

I had my feeding tube replaced for a new model. As you know and will be aware of, bad veins are a symptom of this condition. I opted for no sedation or aneasthesia since having either would put hours if not days on the job in hand. They told me it would hurt but what choice did I have! They gave me pethadine beforehand and also an anti sickness drug administered via IM in my leg -- I thought that hurt but much worse was to come! I was given oxygen and my heart was monitored. my arms were placed by my side with two nurses holding on to them -- I knew I was in for a rough ride!

The doctor came and introduced himself then went on to tell me that it would hurt. " Please get on with it" I thought " The sooner they did it, the sooner I was out of here.

He grabbed hold of my tube then began to pull pressing down on my tummy as he pulled harder and harder --- I tell you it was pure agony! Finally a felt it go and out it came to an almost rapturous applause. My new tube was replaced in no time and before I knew it, it was over!

I returned to the ward full of praise and I have to say that I was so glad in the end that I opted to have the treatment this way. I was home a few hours later.

I have a little button as opposed to a great long hose pipe and it looks quite nifty.

Just resting today and so glad it's all over!

 

Best wishes

Barbs xxx

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I have been thinking about you since yesterday, wondering how things were going. Glad to hear it all went well (except for the pain -- they could have at least given you a bullet to bite on). I am so happy for you. Now kick back and relax for a bit -- you deserve it!


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hi Barbara,

I am so glad your tube is replaced and that you are happy with the new one. I hope everthing turns out well for you with the new one. I'm sorry you had such a painful experience though.

 

I enjoy reading your blogs and look forward to the next one!


ISN Artist

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(((((((((((((((((((Big Hugs to you Barb))))))))))))))))))))))))))

 

You're a better woman than I! I can't believe you went through that procedure with no sedation, but I do understand why. My heart and admiration goes out to you.

 

I hope the new device works better for you. It sounds like, just aesthetically, it's better.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Yay Barbs!

 

I don't know why but I am crying. I think because your telling of it puts me there and I am thinking of all you are going through right now.

 

Good job woman! That's pretty brave going that route.

 

Glad it was over quick and that you have a nifty new button.

 

Take it easy,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Wow Barbs,

You tell your story in such detail, I almost feel as if I were there with you! You are certainly brave to do this with no medication, but I can see why you might opt for that route.

 

So you have your new tube and you are raring to go....after you get some much deserved rest in! I am so glad that it is over with (probably not as much as you are), and it is great that your hardware is smaller and more discreet.


*WestCoast*

 

********

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Barbs ,

 

Oh, my.......ouch!!! I am such a wimp....I doubt I could have done that!!! Hope you're feeling better tomorrow.

 

Take care, Everyone.

Margaret

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Barbs, There is NO WAY I could go through that without sedation!!!!!! You have my utmost admiration.

 

Sherion

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Barbs,

You are one brave lady! I can't believe you went through with it and was so brave about it! I admire you.

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Oh my Barbs,

 

I just read your story and realized I was holding my breath! I used to do things like that--opt out of pain killers and such, but no more. I have become the Queen of What Do You Have That Might Help Me Get Through This Procedure?

 

I'm glad it's over for you and that you like your nifty button. I am sure you are the cat's meow! Seriously, rest and be nice to yourself and insist the rest of your family realizes how much this hurt so they are nice to you as well!

 

xoxo emmie

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I feel I have to come clean about this! I'm going on holiday you see and the last thing I wanted was a 3 - 4 day stint in hospital. I've had some horrific experiences with needles believe me? The surgery I went through 2 years ago was enough for me. They struggled and struggled to find a vein - opting in the end to put in a femural line. I had one good femural vein in my right leg but they missed the vein, hit the artery and pandemonium set in in the aneasthetic room.

They got the bleeding under control and began to ***** me everywhere, my feet,hands, neck and without success! Finally they went into my cartoroid vein in my neck! Before all this however, I was put through another procedure -- an epidural in my spine to lessen the pain after surgery.

A few days later I became seriously ill with an infection in my neck line and if that wasn't enough I was going through the aftermath of a huge operation, connected to every machine in the hospital! I looked like I was in the middle of a firework display!

Right, depressive post hereth ended and that's my reasons for not having aneasthesia.

On a happy note! I'm going to Crete on Friday --- Yippee! Just in the middle of washing all my summer clothing and sporting a new wardrobe courtesy of my hubby who must have had a bang on the head! He's actually got his wallet out and bought me some lovely gear and I didn't need to spend a penny- He he!

My daughter and I were like two naughty schoolgirls and looking at the pile of shorts bikinis and tops, I'm wondering how I'm going to get them all in the case but guess what?--- I will!

Connecting to my liquid feed now!

 

Best wishes to you all

 

Barbs xx

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Oh Barbs,

 

You are very brave! I'm glad for you that it went well, although painful, and is all done now for you to go to Crete! BTW, how did you get on for feeding when your tube was out of commission?

 

How are your parents now? Were they still in hospital when you were in?

 

Have a great holiday!!

 

Warm hugs,

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Barb, have a wonderful time in Crete. You were brave. Have a great time with your daughter and hubby. New memories are always fun to make. Life is good. Considering the alternative. Let's not consider that one. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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I'm not at all brave it was just necessity rather than heroism! Thankyou for all your good wishes and I'll toast you all beside that lovely Greek sunset!

Sherrill! My Father is out of hospital and doing well, my Mother is a different story.

She suffers with Alzhiemers and cannot communicate with us any more. Her thrombosis has gone which is good news but she refuses to eat or drink! It's heartbreaking. I went to see her yesterday as I do every day and she looked straight through me -- doesn't know me! She will need a lot of care when she comes home but that's a long way down the line. I feel sort of guilty going on holiday and I'll worry about her when I'm away! Terrible disease dementure!

 

As for my new tube well! I managed quite well with the old one even though it needed to be changed -- it still worked. I could have ended up with peritonitis if I'd continued to use it --- thankfully it never came to that!

 

I'm packing right now. We fly tomorrow at 8.30 in the evening. I'm very un prepared. Thanks to everyone for your kind words and well wishes

 

Best wishes to you all!

 

Barbs xxx

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Hi Barbs and I still think you're brave although I understand your reasons.I hope all turns out good from now on you have been through the mill thats for sure.I hope you enjoy your days in Crete.Sounds like so much fun.On another note I'm so sorry about your mom and hope thats not what is in my future.My husband is on Aricept for memory loss and now he has type 2 diabetes.I can see where the meds are working for him though,He still works and I think its been good for him as it occupies his mind.I still find myself repeating things that I just said but on the whole its lots better than it was before the meds.I REALLY enjoy your blogs and your sense of humor.I look forward to reading new ones.Glad you will be able to enjoy yourself and I bet you and daughter really had a fun time shopping.Its nice to have good families and lots of support it keeps us going.Enjoy yourselves and let us know when you're back home.I know the geese will miss you LOL.Hugs and smiles.Mary

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