Jump to content
Sclero Forums

What Constitutes A "flare" For You?

Recommended Posts

I've been feeling pretty good for months. Then my hair started falling out more than usual, hands puffing up again, weight gain, IBS back, the tendon friction rub and now my joints are stiffening up again. All just in time for vacation! yay. :angry:


*sigh* :(


Take care,



Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

Share this post

Link to post
Share on other sites

Sorry to hear. Hugs!

Yeah I'm finding scleroderma is full of flare-ups and was wondering if it was like that with any one else. One week my eyes are dry as sandpaper the next they're fine. Same with my swallowing issues. For a while there I thought I'd be living on applesauce. Lately my cough has been violent and viscous. I'm hoping its just flare.


Don't let this get you down. Have a great holiday



You can deprive the body but the soul needs chocolate

my HMO makes me wear a helmet...

Share this post

Link to post
Share on other sites

Hi Barefut,


I get mild flares every month, a bit more hair falls out than usual, joint/muscle pain and stiffness, weakness, fatigue, usually with a slight fever, etc., but the "biggies" are more like a slow train coming. It starts with a rash, and if it lasts only a couple of weeks, that's a good sign; when it's there for a month, then I get slammed. About a month or two later, one of my eyes get's a lovely pinkeye appearance for about another month, and it either waters or feels dry, depending upon it's mood. The third symptom is about a month or two after that ends, landing me in bed for days on end with flu-like symptoms of high fever, killer body pain, and lung problems. It's a 4 to 6 month cycle whenever these flares hit, and it used to be one big flare every other year, but I've had two in the past year.


However, today I was outside enjoying the sun, although a week ago I couldn't move my right leg at all. So unpredictable! At least some good days are hitting again, and after the past year and a half, they are SOOOO welcome.


Take care lady, and hope your tendons will leave you alone at some point, or a doctor can help you out.



Share this post

Link to post
Share on other sites

My flares always start with my eye twitching. What's horrible is that once my eye starts twitching then I know I stress out because I KNOW that it's coming. Then I usually get fever blisters, then all my joints start aching, hair starts falling out (can't afford to lose much more), then here comes my stomach and intestines right after that. It's just lovely.


I can already forecast the weather with my bones.

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now