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Sharonvandee

Pulmonary Embolism

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As posted in another thread I wondered if sleeping tablets were causing me to be tachycardia, short of breath at rest and sweating in the middle of winter when I suffer raynauds well after talking with a good friend of mine on here I have decided to post and ask if anyone has had a Pulmonary embolism as my DR has asked me to have a ct scan for one, she has also carried out some blood test d-dimer, esr, thyroid and fbe to try and work out why I am getting worse.

 

I am anticardiolipin positive so this probably complicates things a little but I do use clexane injections when I need to.

 

I am a little scared right now and as usual I try to find other things to blame for what is going on rather then looking at scleroderma and all its facets.

 

Has anyone else had these if so is it a simple fix.

 

I dont have the best situation as my general practitioner that knows my condition just went on holidays for 5 mths and the one I am seeing has admitted that she knows very little.

 

That is why I just can't wait to get the clinic and get good advice from those who know and understand the condition, maybe once I am on a management plan the flare ups will stop and life will improve.

 

Thanks for listening, sorry for venting.


Kindest Regards

 

Sharon

 

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

 

a little bent and broken and almost beyond repair!

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Sharon,

I am so sorry that you are having all of these problems. I can't wait until you are seen by scleroderma specialist. Have you had an echocardiogram done?

Nan

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Hey Nan

 

The last echo they did was over 12 mths ago but they may do one in Melbourne I will just have to wait and see I spose.


Kindest Regards

 

Sharon

 

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

 

a little bent and broken and almost beyond repair!

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Sharon,

I found a good article on the Mayo Clinic site on pulmonary embolism if one of the moderators would be kind enough to link it for you.

 

Seven more days honey.

Jen

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No problem, Jennifer.

 

Here is the article Jennifer referred to, Sharon: Pulmonary Embolism (MayoClinic.com)

 

Sharon, I do hope you will find better service with the specialist clinic.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Thanks Jenny and Jefa for the link.

 

They found a smaller clot in the leg yesterday so the article in the link was fairly spot on they usually do start in the leg for me.

 

I had alot of test done yeasterday including a lung perfusion ventilation study to try and see what is going on and to see if the clot is dispersing.

 

So we will see what she says when I see her.

 

6 days to go and counting lol


Kindest Regards

 

Sharon

 

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

 

a little bent and broken and almost beyond repair!

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Sharon,

 

I have no idea if there is a connection to scleroderma or not, but I had 2 PE's within an few hours of each other 3-4 years ago. I am on coumadin and for some reason (I don't know why) my doctor believed it to be sclero related. These PE's followed the removal of a large mass of blood clots in my lower right leg by 3 weeks. I take my blood thinners and have my blood tests regularly. As a side benefit (imagine a benefit??) the blood thinners have helped my Raynauds symptoms.

 

Hope this helps. Make today a wonderful one!

Laurie

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