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Patty

Lidocaine Patch

11 posts in this topic

I was wondering if anyone here has used the lidocaine patch for pain and if it helped at all. I am on pain meds but I hate to take them all the time yet I find that the longer I am off the steriods, the more pain I am in. I need something to help so if this works I would be so happy. Right now I usually dont take meds during the day because I have the little one but the pain stops me from doing a lot.

 

Hugs,

Patty


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Patty,

Thanks for bringing up this topic. I could benefit from this discussion as I'm sure everyone here can.

 

I've never tried any patches, so if some of you have, let's hear it! Within the forum guidelines that is. :)

 

Love Sweet


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Lidocaine patches are quite expensive. Patty, I can see you walking around with patches everywhere. One patch cut into 20 little pieces for each pain area. Usually, the patches are put in one or two locations for pain control. You can cut them and use a patch on say the back of your hand for hand pain. It only works in the exact area that you place it. Unless, someone has heard differently that is how I used them after a bad sprain and small surgery on my hand. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Sheryl I should have known the patches were expensive because it would be perfect for me. I hate to take the vics during the day because I do not like being more of an air head that I already am LOL. Like I said in my post, the pain is getting so badnow that I am off the steriods that I really need something. I hope someone has some ideas other then narcs. I am finding that the vics really really slow down my system so thats another reason I need to try something different.

 

Heres hoping that s0meone has another idea for us!!

Patty

 

OH and I would be walking around with patches all over lol my hip, my hand, my knee, my toes and wrists and fingers. maybe I could just make a dress and gloves out of them and be all set LOL


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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I also hate narcs and therefore asked my doctor for pain killer - yuch! The one he prescribed was a narcotic or opiate and may not be a controlled substance, but it ought to be. For me (which I am a really light weight in that area), I took one dose and was stoned all day long! I hate that feeling. Haven't taken it again. It may not affect all people that way I guess. My regimen right now, which is of my own concoction, is naprosyn 660mg twice daily, ibuprofen 800mg twice daily, tylenol 1000 mg three times daily, and aspirin 325mg daily. I spread these all out so I'm taking something every couple hours and it seems to help me most of the time. Other times though, when I feel like somebody has just beaten me to a pulp and my muscles are just cramping everywhere, I take an anti-depressant, mostly at night. It doesn't give me the stoned feeling that narcs do. It also helps me sleep, which is always a challenge. (It also helps my family survive my PMS).

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Right now I am in so much pain I do not care if its a narc or not!! I like what you are doing for your pain to avoid the narcs. I can't do what your doing because I have liver involvment but if what your doing works for you I think its great. I am happy that you found a way to keep the pain in its place. I am sure if I keep trying things I too will figure this one out. I know I am not alone in the pain dept.

 

I just picked up my patches so I will let you know how it works. As for right now I am off to put some one.

 

Hugs,

Patty


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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Patty and all others,

I am so sorry to read that so many of you suffer from the pain caused by scleroderma. It just proves how this disease affects us in so many different ways. Pain is not one of my symptoms and I'm very thankful for that.

 

I don't know if any of this is going to help, but I'm providing a couple of links to ISN pages on Pain Management and treating the pain of fibromyalgia. Hopefully you'll find something in these articles that might help.

 

Best wishes to you all for finding that combination that works.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Patty, I just wanted to say that I get some relief from an OTC pain relieving creme for mild arthritis pain that you rub on the painful spots and from taking 2 tylenol arthitis capsules. The Tylenol arthritis slowly dissolves in your stomach so it works for 8 hours instead of 4.Helps at night. I've been trying not to take too many NSAIDS since tests came back that I have stage 2 kidney failure.

Hope you find some relief,

Hugs, Piper

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Patty,

 

I use a pain patch that has helped tremendously. If you want to e-mail me directly, I can give you the name of the patch, so you can discuss it with your doctor. You can place the patch anywhere on your body(it doesn't have to be in the location of your pain) and it lasts for 3 days.

 

Good luck

 

Dave in Florida

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Hi, Patty!

I have rheumatoid arthritis and am in pain to one degree or another most of the time. However, I think it's pretty well controlled right now by my medicines. I take Celebrex every day and 3-5 mg. of prednisone. I tried, on my own, to slowly get off the prednisone, but I was in horrible pain and my doctor told me that's a really low dose of prednisone and to stay on it! She had me up it to 5 mg. for a week and then go back down to 4. That's where I am with it right now. I still wish I didn't need it, but apparently, I do!

I did have a Lidocaine patch at one time to try to help a digital ulcer. The pain of the ulcer was so terrible that, if the patch helped at all, I really couldn't tell it, and, yes, it was very expensive. Fortunately for me, my doctor gave me a sample. I was told that it's a lot cheaper to use Lidocaine cream or gel (sorry but I have forgotten which it is) which is in a tube. You just squeeze out a little and rub it on the pain. I think this probably would be pretty effective on joint pain and that sort of thing -- but not on a digital ulcer! The patch, with the medicine soaked into it is very convenient, but you pay for the convenience. Ask about the cream or jel. I believe you'll save money.

As for pain medication and such, there's a time for them, too. After all else failed, including a strong narcotic , a pain management doctor prescribed another narcotic and it was wonderful. I did not go around like a zombie and the pain relief was wonderful -- the first I'd had for a couple of months in constant agony. My doctor explained that when you have serious pain, you can take a lot more pain medication without being bombed on it. I sort of visualized it as the pain soaking up all that drug and using it for easing the pain, thus leaving none to make me a zombie. That's just my way of explaining it!

I can't recommend pain management doctors enough! Find one who is an anesthesiologist by specialty and knows about easing pain! Mine really was a lifesaver to me. He seemed to know exactly what I needed and how much of it was the right amount.

 

Mary from Texas

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Patty,

 

The lidocaine can help with relieving pain for short periods. You have to remember 12 hours on and then 12 hours off. Unfortunately, I never got enough relief to stay with the lidocaine patches.

 

I've tried everything from NSAIDs, over the counter creams, prescription creams, lidocaine patches, narcotic patches, another narcotic/opiate med, nerve blocks, and Humira. I currently take the following for UCTD: a strong pain patch, 50 micrograms every 48 hours, another strong pain med. 3-4 pills daily, MTX, Plaquenil, and Humira.

 

For me, the Humira has been a lifesaver. I had to stop taking it for approximately 6 weeks due to a respiratory infection, and I could really feel the difference.

 

Good luck with the patches! I hope you get some relief.

 

:blink:

 

KathiB

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